Ms Henri--I can only imagine what a child experiences seeing their dad in a place like this. Preston has not yet been here (for obvious reasons) and Justin has stated he wishes to wait for that moment. You, Johnny and Jill went through this at an inspiring time from what I gather about the history of this awesome place. And I can testify that it will make life changing moments happen. As Justin said today, everything happens for a reason and while your time was a tough time, it inspired a young child to make such a difference in others lives, and Jill continues that today.
For everyone wanting to do, I do apologize for the delay in posting this information:
Mailing to Justin is:
Justin L. Medley
C/O Shepherd Center
2020 Peachtree Road NW
Atlanta GA 30309
This is the address for anything you wish to go directly to Justin in his room at the inpatient center of Shepherd Rehab Building.
Robyn and Brooke made in it, even through major rain storms, and were able to visit with Justin for the last 45 minutes of tonight. He was still in good spirits and doing some serious Justin personality.
Dad and I both had our first experience of helping him to get a good cough out and I think we both are a bit too soft at it. The nurses are nice and say it will come with doing it more often so we'll have to take their word for it. He also informed us that he can hit his upper right thigh with his hand and it makes the bottom of his right foot tingle.
So very much is happening so very fast and we're just thankful and blessed for it all.
Please continue to pray because that is the main power that I believe is guiding this journey.
For my Delaware sis (MaMa Hen) and anyone else that thinks this is admirable, this isn't any more than what you all as mothers would do. I don't take compliments well so I will just say this, Thank you!! Each of you would be there, most likely in better ways than I have but be there!! Keep praying, love you all, sorry if I didn't address everyone!!
Love you guys!!!!
Friday, July 31, 2009
More blessings
Wonderful afternoon visit--we found him at 2:45 sleeping which we figured would be the case since he had his PT/OT this morning and afternoon. We dressed up his room with the balloon from Dothan's nurses (it's still flying--wow), of course we had to bring Sponge Bob and added a few more sponge items we picked up from our trip today to get him some more clothes and lotion. He has his pics of Preston, Robyn and Simian and his LSU Get well card made by sis Robyn.
He's off calorie counting, no more tube feeding and hopefully gets that removed by Monday. His PIC line is coming out tonight and has been told he will lose the traech in 2 weeks (but he said he feels it will be by end of next week). He comes off the catheter most likely Monday and will start the IC line. They did a nerve test on him today in his right arm and he said he is also starting to get some sensation in his right leg. He did wonder why its not coming in both legs at the same time, of course he looked at me funny when I tried giving my "medical" opinion about how the brain works both sides differently, right side/left side theory (made sense to me when I said it but told him we'd ask the doctors Monday--ha)
He had a cup of coffee and a Reese cup--he was tickled, can pretty much have whatever he wants as so confirmed by his nurse, who by the way is impressed with him today when she found out he had just gotten in the chair for the first time yesterday. Supper was sphagetti & meatballs with corn, chocolate cake and banana. He said the meatballs were good, the spaghetti had cilantra in it (yuk he said, course I like cilantra) corn was delicious-he made me take a bite to know for myself how good it was, he left the cake (go figure--passed up the chocolate) but ate the banana----acting like a monkey the whole time, he would lift his right arm to scratch his head and use his left one to rub like he was scratching his bottom area. We laughed hard on that one and the nurse told us that we were having way too much fun in there!!
He did let me know that one of the counselors came in and he was a bit perturbed because of the negativity he tells all of the patients--told his roommate the same thing, you'll never walk again so you need to come to terms with it, how do you feel about that?? Justin said he wanted to be around those that would encourage him to push himself and even though he knows it won't be tomorrow he knows he can improve and doesn't want to hear from those that say it won't happen. He is already impressing so many with the progress he's made and only been here 4 days. He lifted 7 pounds with his right arm today and 2 with his left-he was disappointed with his left but I told him that was normal and after so much body & weight mass loss, he needed to get his food intake up and keep working with rehab to build his weight and muscles back up.
HE WAS IN SUCH GOOD SPIRITS, LOTS OF CONVERSATION ABOUT MANY THINGS AND MUCH OF JUSTIN PERSONALITY. He's got the nurses wrapped and has kept them in stitches for the most part today.
The three hours I was with him this afternoon were the hours that I wish had been recorded in order for everyone to truly get the feel of what a wonderful visit this one was. I know there will be some that will regret having missed it; take it from me--there will be many more good reports to come and many more chances to catch them. His spirit, faith and determination has shown themselves big time this afternoon.
Also, he saw himself for the first time in the mirror and has decided that he needs a haircut, shave the sides of the head and trim down the top--military Justin--he's ready for one now. We have the razor so we'll check with the nurse when they get him ready to get in bed if we can do it real quick like and hope that makes him feel bunches better.
BP was 103/66 and Nurse Erica said that was great. HR at 78 and temp normal. He's no longer being monitored for SPO so I'm guessing he's doing awesome in that area also.
WE'RE blessed and know it. These are the visits that keep my faith so strong that he will recover and walk again. Continue to pray, we can testify to God's healing, mercy and blessings.
Love you all, keeping track of Robyn and Brooke--they just hit 85 coming into the Georgia line. Praying they make it before the 9;00 cut off for visitation (and it looks like they might).
Will update again soon. Thank you all so very much!!!
Wayne & Peggy----we certainly appreciate everyone you guys have done also!!
He's off calorie counting, no more tube feeding and hopefully gets that removed by Monday. His PIC line is coming out tonight and has been told he will lose the traech in 2 weeks (but he said he feels it will be by end of next week). He comes off the catheter most likely Monday and will start the IC line. They did a nerve test on him today in his right arm and he said he is also starting to get some sensation in his right leg. He did wonder why its not coming in both legs at the same time, of course he looked at me funny when I tried giving my "medical" opinion about how the brain works both sides differently, right side/left side theory (made sense to me when I said it but told him we'd ask the doctors Monday--ha)
He had a cup of coffee and a Reese cup--he was tickled, can pretty much have whatever he wants as so confirmed by his nurse, who by the way is impressed with him today when she found out he had just gotten in the chair for the first time yesterday. Supper was sphagetti & meatballs with corn, chocolate cake and banana. He said the meatballs were good, the spaghetti had cilantra in it (yuk he said, course I like cilantra) corn was delicious-he made me take a bite to know for myself how good it was, he left the cake (go figure--passed up the chocolate) but ate the banana----acting like a monkey the whole time, he would lift his right arm to scratch his head and use his left one to rub like he was scratching his bottom area. We laughed hard on that one and the nurse told us that we were having way too much fun in there!!
He did let me know that one of the counselors came in and he was a bit perturbed because of the negativity he tells all of the patients--told his roommate the same thing, you'll never walk again so you need to come to terms with it, how do you feel about that?? Justin said he wanted to be around those that would encourage him to push himself and even though he knows it won't be tomorrow he knows he can improve and doesn't want to hear from those that say it won't happen. He is already impressing so many with the progress he's made and only been here 4 days. He lifted 7 pounds with his right arm today and 2 with his left-he was disappointed with his left but I told him that was normal and after so much body & weight mass loss, he needed to get his food intake up and keep working with rehab to build his weight and muscles back up.
HE WAS IN SUCH GOOD SPIRITS, LOTS OF CONVERSATION ABOUT MANY THINGS AND MUCH OF JUSTIN PERSONALITY. He's got the nurses wrapped and has kept them in stitches for the most part today.
The three hours I was with him this afternoon were the hours that I wish had been recorded in order for everyone to truly get the feel of what a wonderful visit this one was. I know there will be some that will regret having missed it; take it from me--there will be many more good reports to come and many more chances to catch them. His spirit, faith and determination has shown themselves big time this afternoon.
Also, he saw himself for the first time in the mirror and has decided that he needs a haircut, shave the sides of the head and trim down the top--military Justin--he's ready for one now. We have the razor so we'll check with the nurse when they get him ready to get in bed if we can do it real quick like and hope that makes him feel bunches better.
BP was 103/66 and Nurse Erica said that was great. HR at 78 and temp normal. He's no longer being monitored for SPO so I'm guessing he's doing awesome in that area also.
WE'RE blessed and know it. These are the visits that keep my faith so strong that he will recover and walk again. Continue to pray, we can testify to God's healing, mercy and blessings.
Love you all, keeping track of Robyn and Brooke--they just hit 85 coming into the Georgia line. Praying they make it before the 9;00 cut off for visitation (and it looks like they might).
Will update again soon. Thank you all so very much!!!
Wayne & Peggy----we certainly appreciate everyone you guys have done also!!
Friday July 31
He's had his sponge bath this morning, small breakfast because we insisted he has to count calories to get off the tube feeding and pearly whites brushed. He's hurting but ready to go, got him in his chair and he was a bit bored staring at us and four walls waiting on PT. She came in early to get him so he should be good to go for a while. Still no doctor--we got there at 8:15 to see her for the 8-9 rounds but still no show at 9:30. Hopefully Dr. Bilsky will be back next week and we can get out doctor and team consulations done.
Word is they will take it easy on him through the weekend but come Monday--it should be rigorous. He said the new pillow is two thumbs up and we have to do another WalMart run for some shorts and different shirts.
Not much else so far today. I'm sure that will change once we go back after all the work outs.
WE love you all, keep praying!!
Word is they will take it easy on him through the weekend but come Monday--it should be rigorous. He said the new pillow is two thumbs up and we have to do another WalMart run for some shorts and different shirts.
Not much else so far today. I'm sure that will change once we go back after all the work outs.
WE love you all, keep praying!!
Thursday, July 30, 2009
Amazing Grace
Laundry done and Dad's trip through Atlanta which proved to be amazing in itself since what appeared to be a close to simple trek to the pillow store turned out to have detours and 'round about ways' to get there---with one way roads, he said getting back was the easiest. BUT Justin said 'thanks for the pillow' about 3 times. So far it seems to be the best fit for him.
QueenMom--love you too----I know I will never forget the first time I saw you lay your hands on my child and "dote" over him (as previously stated, I just knew Justin was going to slap one of us for worrying so much over him and you had more time with him so secretly I was hoping he would slap you first---ha ha, just kidding-I would have stood in front of you if it meant him raising that hand up for us all).
Last visit had his temp down, he said they had him "naked" for a while again but of course we figured it was to make others jealous (lol) he agreed. He said he had been in the chair for 3 hours and had only had pain meds once. He said he wasn't hurting near as bad as earlier and is still determined he is walking out of here.
He also mentioned that he could feel in his mind that he wanted to stretch out his legs and knew that once he was better able he would get his legs to cooperate with those thoughts. He showed us (without wrist bands) that he could move his wrists better, back and forth, front to side, and believes he will get the hands and fingers going soon.
HE reminded us that docs should be there around 8-9 in the morning and we'll be there and he has some questions about the IC (takes the place of the catheter) and some of the other sensations that he is feeling. Justin has been extremely alert and attentative to what happens to him and why. I think some of the nurses here have been impressed with what he knows, how much he tells them and how much he wants to know what is happening & why and that he can communicate if they will take the time to acknowledge that.
FOR BOTH OF MY CHILDREN, I AM SO VERY PROUD---WORDS WILL NEVER EXPRESS AND I AM VERY BLESSED WITH HAVING JUSTIN AND ROBYN BOTH. My heart will only continue to grow with all those that have entered into our lives and will further glow from those that have supported us through all of this.
I continue to ask in prayer that all will remain safe, blessed and renewed in faith. I expand my prayers now to include everyone that I know, love, have an acquaintance with or simply passed in a hall and only know that God please bless, ease the pain, renew faith and spirit and heal and continue to thank God for the many blessings. In Jesus Name, Amen!!!
QueenMom--love you too----I know I will never forget the first time I saw you lay your hands on my child and "dote" over him (as previously stated, I just knew Justin was going to slap one of us for worrying so much over him and you had more time with him so secretly I was hoping he would slap you first---ha ha, just kidding-I would have stood in front of you if it meant him raising that hand up for us all).
Last visit had his temp down, he said they had him "naked" for a while again but of course we figured it was to make others jealous (lol) he agreed. He said he had been in the chair for 3 hours and had only had pain meds once. He said he wasn't hurting near as bad as earlier and is still determined he is walking out of here.
He also mentioned that he could feel in his mind that he wanted to stretch out his legs and knew that once he was better able he would get his legs to cooperate with those thoughts. He showed us (without wrist bands) that he could move his wrists better, back and forth, front to side, and believes he will get the hands and fingers going soon.
HE reminded us that docs should be there around 8-9 in the morning and we'll be there and he has some questions about the IC (takes the place of the catheter) and some of the other sensations that he is feeling. Justin has been extremely alert and attentative to what happens to him and why. I think some of the nurses here have been impressed with what he knows, how much he tells them and how much he wants to know what is happening & why and that he can communicate if they will take the time to acknowledge that.
FOR BOTH OF MY CHILDREN, I AM SO VERY PROUD---WORDS WILL NEVER EXPRESS AND I AM VERY BLESSED WITH HAVING JUSTIN AND ROBYN BOTH. My heart will only continue to grow with all those that have entered into our lives and will further glow from those that have supported us through all of this.
I continue to ask in prayer that all will remain safe, blessed and renewed in faith. I expand my prayers now to include everyone that I know, love, have an acquaintance with or simply passed in a hall and only know that God please bless, ease the pain, renew faith and spirit and heal and continue to thank God for the many blessings. In Jesus Name, Amen!!!
Thursday evening
Hmmm----have I mentioned that things work fast around here. After I left earlier around 1:00, we did a quick lunch and then a family orientation. This covered some of the things we had already been told and then covered some things that we haven't yet gotten to in progress so we are still feeling a bit like 'fish out of water'--flopping around like we know what we should be doing but so very much unsure of how to do it.
Our visit after 4:00 found him not in his room. We found him in his chair in the therapy room (yay)...PT had him up and getting familiar with his chair--speedster, he'll be getting hall tickets soon because he has gotten this chair down, other than maneuvering through his door-he was doing super. He's hurting again and his SPO2 hasn't gotten above 93 but is expected to once again resume 100 with the help of being up and moving about. Still had a fever, barely went down--was 101.4 is now 100.9 (found out he has a bladder infection but have been told this is extremely common).
The pillow we found last night isn't quite doing the job for him so Nurse Scott (go figure, his dad is Scotty telling him what to do and his nurse is Scott--telling him what to do, ha ha). Scott told us a local store in town should have the foam, form fitting pillow he wants so dad's fixing to head out in this Atlanta traffic to find a good pillow and tennis shoes. Me--I'm doing laundry.
His neck is hurting worst and will for a while. Being in bed for so long, he now has to regain the use and strength of the neck, vertebrae and muscles. He said as long as his team kept him with pain meds, he would do whatever they asked. Which leads me to report that he's been in his chair since before 4:00 and was sitting in that chair eating supper when we left - eating supper by way that his assistant actually had his hand wrist on, bent his fork and positioned it just right and Justin is feeding himself (of course with some help by way of someone cutting his food for him and positioning it just right on the plate and helping with his juice BUT HE IS EATING BY HIMSELF). And continues to tell anyone that walks in and evaluates or expresses a plan for the future that HE WILL WALK OUT OF HERE!!!!
We don't know specifics yet because we are just getting settled. We haven't been notified of a medical consultation which is suppose to be with the doctor (suppose to be Dr. Bilsky), then we have a consult with his TEAM--PT, OT, Speech, Respiratory, Case Manager---I think that is all of them--probably forgetting someone. We have, however, been advised if it doesn't happen tomorrow then most likely Monday.
He does have a roommate--Michael, from Indiana, 18 years old, starting school as a senior, car accident, only one of 4 that was injured and his differs from Justin. His happened a week ago, he can talk, paralysis in his legs, got to Shepherd within days of the injury, no traech and can text his dad to let him know the hospital food "sucks" (I have found out that you can bring them food now, so Ms. Henri--looks like Justin may be stepping up on the flavor chain--lol).
He starts first round of physical therapy at 10 in the morning for 1 1/2 hours then occupational therapy gets him at 12 for another 1 1/2 hours. They want to start him staying in the chair at least 5 hours per day with goal to be 8 - 12 hours a day being up whether therapy or chair. Not sure what will fill up the rest of the time since we don't know who all else will come and go through this process. Will continue to update you all of the many things to come.
MaMa Hen---you said turn them over to them and let them heal him but you darn sure didn't say it would be such a whirlwind (love you though, he is in good hands from what I've seen so far). I wish we were more in tuned with what is going on as it goes on but that I suppose is the trade off to having been blessed with getting here.
Love you all and will continue--gotta go get the clothes on to dry. Thank you all for the prayers, we love you all and appreciate you all and miss you all and will pray for you as we know you are praying for us.
Let's see what tonight brings.....................
Our visit after 4:00 found him not in his room. We found him in his chair in the therapy room (yay)...PT had him up and getting familiar with his chair--speedster, he'll be getting hall tickets soon because he has gotten this chair down, other than maneuvering through his door-he was doing super. He's hurting again and his SPO2 hasn't gotten above 93 but is expected to once again resume 100 with the help of being up and moving about. Still had a fever, barely went down--was 101.4 is now 100.9 (found out he has a bladder infection but have been told this is extremely common).
The pillow we found last night isn't quite doing the job for him so Nurse Scott (go figure, his dad is Scotty telling him what to do and his nurse is Scott--telling him what to do, ha ha). Scott told us a local store in town should have the foam, form fitting pillow he wants so dad's fixing to head out in this Atlanta traffic to find a good pillow and tennis shoes. Me--I'm doing laundry.
His neck is hurting worst and will for a while. Being in bed for so long, he now has to regain the use and strength of the neck, vertebrae and muscles. He said as long as his team kept him with pain meds, he would do whatever they asked. Which leads me to report that he's been in his chair since before 4:00 and was sitting in that chair eating supper when we left - eating supper by way that his assistant actually had his hand wrist on, bent his fork and positioned it just right and Justin is feeding himself (of course with some help by way of someone cutting his food for him and positioning it just right on the plate and helping with his juice BUT HE IS EATING BY HIMSELF). And continues to tell anyone that walks in and evaluates or expresses a plan for the future that HE WILL WALK OUT OF HERE!!!!
We don't know specifics yet because we are just getting settled. We haven't been notified of a medical consultation which is suppose to be with the doctor (suppose to be Dr. Bilsky), then we have a consult with his TEAM--PT, OT, Speech, Respiratory, Case Manager---I think that is all of them--probably forgetting someone. We have, however, been advised if it doesn't happen tomorrow then most likely Monday.
He does have a roommate--Michael, from Indiana, 18 years old, starting school as a senior, car accident, only one of 4 that was injured and his differs from Justin. His happened a week ago, he can talk, paralysis in his legs, got to Shepherd within days of the injury, no traech and can text his dad to let him know the hospital food "sucks" (I have found out that you can bring them food now, so Ms. Henri--looks like Justin may be stepping up on the flavor chain--lol).
He starts first round of physical therapy at 10 in the morning for 1 1/2 hours then occupational therapy gets him at 12 for another 1 1/2 hours. They want to start him staying in the chair at least 5 hours per day with goal to be 8 - 12 hours a day being up whether therapy or chair. Not sure what will fill up the rest of the time since we don't know who all else will come and go through this process. Will continue to update you all of the many things to come.
MaMa Hen---you said turn them over to them and let them heal him but you darn sure didn't say it would be such a whirlwind (love you though, he is in good hands from what I've seen so far). I wish we were more in tuned with what is going on as it goes on but that I suppose is the trade off to having been blessed with getting here.
Love you all and will continue--gotta go get the clothes on to dry. Thank you all for the prayers, we love you all and appreciate you all and miss you all and will pray for you as we know you are praying for us.
Let's see what tonight brings.....................
Thursday July 30
Sorry for the delay in updating today. Things move fast and without warning here!!
What started as a routine visit with Justin found us having no son in ICU room 9 on the 4th floor of the Marcus Building. Instead, we were politely informed that he was moved to room 203C on the 2nd floor of the Shepherd Building.
Wow--getting shuffled over there found us almost starting over once again. A new nurse trying to get Justin settled, another tour of what's where, who to speak with when he can't be found, his wheelchair came up to the floor as we were getting the quick tour of the therapy room (which is noisy, full of adrenaline and we felt like we were in an awful lot of peoples way).
Our first glance at him told us it would be another day of ups and downs. He was laying flat, no Justin attitude at all, was almost teary looking. He said he was in bad pain--pretty sure it had a lot to do with moving to a new room yet again. He was clearly frustrated with the pain and the fact that it was taking time to get him settled and get his pain meds to him. At one point he actually said he was going to be sick to his stomach (that was new, after 28 days, I had not heard that until now--he's also sneezing more, last night was a first for that too).
He truthfully is going to get a hard lesson in learning how to do things on someone else's time frame and agenda. And this floor let me know real quick this isn't like CCU or ICU--this is fast paced with many other people that may come before Justin. They were polite enough to allow us to visit (kinda of bend some of the visitation rules since he transferred without warning), he ate better lunch-lasagna (not your mama's version but he ate it all), french style green beans (ate about 1/2 or so of those) and key lime pie--ate about 1/2 of that. Lunch time gave me a scare because he knew it was coming that he would produce more secretions and he ended up almost choking and couldn't breathe.
As of 12:20 GA time, he was finally stable and laying naked (he had a 101.4 temp) but finally got his SPO2 back to 93-95 after being at 88. HE has ice packs under his underarms and his "junior" area trying to rid the fever and is getting Ibuprofen for both pain and temp.
I felt more comfortable leaving him. We do Orientation at 3 and hopefully find out a LOT more of what we can expect. This has all been such a whirlwind of information yet we still feel as though we know nothing of what is to come. WE continue to ask each of you to pray for Justin's recovery. Getting him up and moving is the next goal we feel will truly start the recovery process. Thank you all so much. We love you guys and continue to appreciate the prayers and support and encouragement.
Scotty had met many other family members and the miracles are truly around us in hearing their stories and their recoveries. We know that through prayer and support and strength, we will all come through this.
Update again once we know more. Love you guys!!
What started as a routine visit with Justin found us having no son in ICU room 9 on the 4th floor of the Marcus Building. Instead, we were politely informed that he was moved to room 203C on the 2nd floor of the Shepherd Building.
Wow--getting shuffled over there found us almost starting over once again. A new nurse trying to get Justin settled, another tour of what's where, who to speak with when he can't be found, his wheelchair came up to the floor as we were getting the quick tour of the therapy room (which is noisy, full of adrenaline and we felt like we were in an awful lot of peoples way).
Our first glance at him told us it would be another day of ups and downs. He was laying flat, no Justin attitude at all, was almost teary looking. He said he was in bad pain--pretty sure it had a lot to do with moving to a new room yet again. He was clearly frustrated with the pain and the fact that it was taking time to get him settled and get his pain meds to him. At one point he actually said he was going to be sick to his stomach (that was new, after 28 days, I had not heard that until now--he's also sneezing more, last night was a first for that too).
He truthfully is going to get a hard lesson in learning how to do things on someone else's time frame and agenda. And this floor let me know real quick this isn't like CCU or ICU--this is fast paced with many other people that may come before Justin. They were polite enough to allow us to visit (kinda of bend some of the visitation rules since he transferred without warning), he ate better lunch-lasagna (not your mama's version but he ate it all), french style green beans (ate about 1/2 or so of those) and key lime pie--ate about 1/2 of that. Lunch time gave me a scare because he knew it was coming that he would produce more secretions and he ended up almost choking and couldn't breathe.
As of 12:20 GA time, he was finally stable and laying naked (he had a 101.4 temp) but finally got his SPO2 back to 93-95 after being at 88. HE has ice packs under his underarms and his "junior" area trying to rid the fever and is getting Ibuprofen for both pain and temp.
I felt more comfortable leaving him. We do Orientation at 3 and hopefully find out a LOT more of what we can expect. This has all been such a whirlwind of information yet we still feel as though we know nothing of what is to come. WE continue to ask each of you to pray for Justin's recovery. Getting him up and moving is the next goal we feel will truly start the recovery process. Thank you all so much. We love you guys and continue to appreciate the prayers and support and encouragement.
Scotty had met many other family members and the miracles are truly around us in hearing their stories and their recoveries. We know that through prayer and support and strength, we will all come through this.
Update again once we know more. Love you guys!!
Wednesday, July 29, 2009
Prayer request
We have been so blessed with the amount of concern and prayer extended towards Justin and in receiving these blessings, I truly feel our support group has so much compassion you will all join me in this request.
I have just learned that my sister (MaryBeth in Delaware) is now calling upon the power of Faith and God's healing. Her husband Ken has not felt good in the past few weeks and has recently found out that he has suffered a heart attack. Bad scenario about this is several doctors were involved in trying to determine what was wrong all the while with Ken telling them to do a stress test. Once finally done, they did determine he suffered a heart attack and is in the process of getting another appointment with a heart doctor that will evaluate damage and help them move forward with recovery.
I believe in the power of prayer and God's healing hands. I ask you all to say a prayer that Ken Fisher will receive the doctors that will help God to heal his heart and speed his recovery, In Jesus Name, Amen!! I ask that God be with them in faith, strength and peace of mind as they endure the coming days until such time he is healed. I thank God and all of you for the blessings we all receive. Much love and appreciation to you all!!!
Words will never express the gratitude and love we feel for everyone that has been our support and encouragement. THANK YOU!!!
We will continue to update as we proceed down this journey. Ms. Lue---know that we think of you often also (DJ remains in our hearts and prayers)!!
Also, forgive me for not mentioning this earlier---Aunt Carol--we were sorry to hear of your fall and am forever grateful it was not more serious. While this will not take your pains away, we will pray that God eases that pain while you recover from the bumps and bruises. We have not yet told Justin so as not to worry him further but know that you are in our thoughts and so very much appreciate all that you and Charles have done and prayed over.
Love you all-----Mama Hen, I think we found a Hen Jr. here--I think you would love her too--her name is DeDe and she so made me think of you tonight. And Henri--Nurse Ken said he had tried the meatloaf ONCE and it was definitely awful, not just Justin fussing about hospital food (ha ha). Miss you all and continue to appreciate you all!!!
I have just learned that my sister (MaryBeth in Delaware) is now calling upon the power of Faith and God's healing. Her husband Ken has not felt good in the past few weeks and has recently found out that he has suffered a heart attack. Bad scenario about this is several doctors were involved in trying to determine what was wrong all the while with Ken telling them to do a stress test. Once finally done, they did determine he suffered a heart attack and is in the process of getting another appointment with a heart doctor that will evaluate damage and help them move forward with recovery.
I believe in the power of prayer and God's healing hands. I ask you all to say a prayer that Ken Fisher will receive the doctors that will help God to heal his heart and speed his recovery, In Jesus Name, Amen!! I ask that God be with them in faith, strength and peace of mind as they endure the coming days until such time he is healed. I thank God and all of you for the blessings we all receive. Much love and appreciation to you all!!!
Words will never express the gratitude and love we feel for everyone that has been our support and encouragement. THANK YOU!!!
We will continue to update as we proceed down this journey. Ms. Lue---know that we think of you often also (DJ remains in our hearts and prayers)!!
Also, forgive me for not mentioning this earlier---Aunt Carol--we were sorry to hear of your fall and am forever grateful it was not more serious. While this will not take your pains away, we will pray that God eases that pain while you recover from the bumps and bruises. We have not yet told Justin so as not to worry him further but know that you are in our thoughts and so very much appreciate all that you and Charles have done and prayed over.
Love you all-----Mama Hen, I think we found a Hen Jr. here--I think you would love her too--her name is DeDe and she so made me think of you tonight. And Henri--Nurse Ken said he had tried the meatloaf ONCE and it was definitely awful, not just Justin fussing about hospital food (ha ha). Miss you all and continue to appreciate you all!!!
Wednesday night
OMG--each visit so differs from the one prior to---Justin has once again suggested that we need to 'relax', even asked if we needed some of his morphine. He said he understood that maybe we were over-doing it trying to let him know that we were here for him and said he appreciated it yet once again stated he knows he 'is going to be okay'.
At 8:50 his BP was 103/54, SPO2 at 97 and HR at 92--HR was up mainly because of all the head scratching we were doing. He said he can't purr like a cat but he sure tried and had his right hand moving like a dog would shake its leg during a good belly rub.
Apparently we still suck at lip reading. It's amazing how I can get that first time but thought Philly Cheese steak had something to do with fillet fish (ha).
AND he is working his charm with these Atlanta nurses too--they have set up his LSU mug (thanks Shaggy) with iced-water and a hose running from it to a mouth piece that is clipped to the side of his bed so he can get a swallow of water whenever he wants it.
All of the nurses seem impressed with his progress since yesterday, one even came in and jokingly said she was about to get her boxing gloves on and he lifted his arms as if to say 'bring it on'.
He was more talkative, we cleaned out his ears (that is a definite OMG). I must have used about 20 but we think he should be able to hear better now and he said he was getting his sense of smell back big time which will make his sense of taste really wake up. He's asking a lot for his head to be scratched and loving every minute of it.
I lost my first post before I got to you guys so I'm going to post this and come back to you soon.
At 8:50 his BP was 103/54, SPO2 at 97 and HR at 92--HR was up mainly because of all the head scratching we were doing. He said he can't purr like a cat but he sure tried and had his right hand moving like a dog would shake its leg during a good belly rub.
Apparently we still suck at lip reading. It's amazing how I can get that first time but thought Philly Cheese steak had something to do with fillet fish (ha).
AND he is working his charm with these Atlanta nurses too--they have set up his LSU mug (thanks Shaggy) with iced-water and a hose running from it to a mouth piece that is clipped to the side of his bed so he can get a swallow of water whenever he wants it.
All of the nurses seem impressed with his progress since yesterday, one even came in and jokingly said she was about to get her boxing gloves on and he lifted his arms as if to say 'bring it on'.
He was more talkative, we cleaned out his ears (that is a definite OMG). I must have used about 20 but we think he should be able to hear better now and he said he was getting his sense of smell back big time which will make his sense of taste really wake up. He's asking a lot for his head to be scratched and loving every minute of it.
I lost my first post before I got to you guys so I'm going to post this and come back to you soon.
2-4 visit
Hmmm---stats as of leaving at 4--BP 96/48, he was given morphine, HR 86 SPO2 99. Speech therapy came in and indicated they may give him a 'voice' by Friday and PT may remove the peg and pull him completely from tube feeding. They've already reduced it due to his eating on his own but will give it another day since he's done so much just in the last 24 hours (I don't think they were expecting him to do this well within the first day). They've given him wrist braces which allows him to do more with his arms without his hands/wrists just dangling--feeling in fingers but still no ability to stretch or squeeze.
Bad news---they won't be getting him in a chair today. Latest we've been told is that he did not transport with a C-Collar on so they cannot get clearance to get him out of bed until the orthopedic doctor can get a new x-ray on his neck/vertebrae. Of course, this was another disappointment for Justin which sparked a minor 'dump' in spirits. He's tired of being told one thing and in the same day, that one thing changes------just don't say it until you're in there ready to do whatever it is you want to see him doing!! Don't know yet when ortho is expected.
They are also laying him in some positions that make us feel uncomfortable much less him. His neck and shoulders are hurting bad right now. We changed his pillow to one of ours and don't know if that helped or hurt. We are heading to Wally World (WalMart) to get him a "foam" pillow (and a small fan--71 degrees isn't cold enough for him and that's as low as his room will go) SO, we'll see if we can cool him down and find the right pillow fit for him to ease some of these new things they are putting his body through.
Still no sensation below abdomen and docs say the legs spasaming (??spellin) is normal--even though we keep holding on that it continues to be a good sign that something's still going on and as with all incomplete spinal injuries-there is always that hope that things will rejuvenate themselves, continually changing and adapting everyday is what we were told.
He couldn't quite get comfortable and said he didn't think he'd get much rest. We have had a lot of people talking with us but no consults with any doctors or 'team' members; hopefully tomorrow!! I can't tell you how many people we've seen--Unit managers, nurses, case managers, housing coordinators and parking security, orientation advisors and all sorts of other people that smile and say 'hello, welcome". Whew--if I'm overwhelmed, I can only imagine what Justin is thinking (other than he wants out of that bed---last person that came in, introduced himself, did his speech then asked "anything I can do for you Justin"--Justin said "get me out of this bed").
Continue to pray that he will be blessed with God's healing and will walk again (and get out of that bed soon)!! Thank you all, much love!!
Bad news---they won't be getting him in a chair today. Latest we've been told is that he did not transport with a C-Collar on so they cannot get clearance to get him out of bed until the orthopedic doctor can get a new x-ray on his neck/vertebrae. Of course, this was another disappointment for Justin which sparked a minor 'dump' in spirits. He's tired of being told one thing and in the same day, that one thing changes------just don't say it until you're in there ready to do whatever it is you want to see him doing!! Don't know yet when ortho is expected.
They are also laying him in some positions that make us feel uncomfortable much less him. His neck and shoulders are hurting bad right now. We changed his pillow to one of ours and don't know if that helped or hurt. We are heading to Wally World (WalMart) to get him a "foam" pillow (and a small fan--71 degrees isn't cold enough for him and that's as low as his room will go) SO, we'll see if we can cool him down and find the right pillow fit for him to ease some of these new things they are putting his body through.
Still no sensation below abdomen and docs say the legs spasaming (??spellin) is normal--even though we keep holding on that it continues to be a good sign that something's still going on and as with all incomplete spinal injuries-there is always that hope that things will rejuvenate themselves, continually changing and adapting everyday is what we were told.
He couldn't quite get comfortable and said he didn't think he'd get much rest. We have had a lot of people talking with us but no consults with any doctors or 'team' members; hopefully tomorrow!! I can't tell you how many people we've seen--Unit managers, nurses, case managers, housing coordinators and parking security, orientation advisors and all sorts of other people that smile and say 'hello, welcome". Whew--if I'm overwhelmed, I can only imagine what Justin is thinking (other than he wants out of that bed---last person that came in, introduced himself, did his speech then asked "anything I can do for you Justin"--Justin said "get me out of this bed").
Continue to pray that he will be blessed with God's healing and will walk again (and get out of that bed soon)!! Thank you all, much love!!
First Visit
Stats first--as of 12pm--BP 110/58 SPO2 at 99 HR 76, he requested pain meds at 11:45a.m. Loritabs. He said the PT nurse is "vicious" She said Justin only thought the military program was hard. They are still commenting that they are hoping to get him up and out of the bed sometime today. I told him I thought that would help, also with the attitude and mental side of things. He didn't get much sleep last night of course that's how they work huh--always need blood or something during the night then you can't find them during the day (ha ha---don't hate us Dothan crew)
He was bathed at 4:00a.m.---we brought him some Axe soap and Crest whitening for his pearly whites. His next bath should have him feeling all special inside (lol) He had breakfast at 7a.m. and yes Amanda--he did have a chicken sandwich with fries last night--we have confirmed that. Don't know what's for supper tonight and he barely ate his meatloaf and mac n cheese for lunch (don't blame him much--he got me to try the meatloaf and it wasn't the best thing I've eaten) BUT he gets his bacon in the morning (yoohoo)
He was hurting some and wanted to rest--we stayed to help him eat lunch and left out around 12:30---next visit is 2 - 4.........will update what new has happened.
Mama Hen is right about how awesome everyone is and what all is available. Only God can perform miracles and I'm pretty confident this is the place that holds many of them!!
Keep praying, love you all for the support!!
OH--he told us not to worry about decorating his ICU room because he wasn't going to be in there for long (still seeing that Justin personality and determination---slacks sometimes but we love each time we get to see it)!!
He was bathed at 4:00a.m.---we brought him some Axe soap and Crest whitening for his pearly whites. His next bath should have him feeling all special inside (lol) He had breakfast at 7a.m. and yes Amanda--he did have a chicken sandwich with fries last night--we have confirmed that. Don't know what's for supper tonight and he barely ate his meatloaf and mac n cheese for lunch (don't blame him much--he got me to try the meatloaf and it wasn't the best thing I've eaten) BUT he gets his bacon in the morning (yoohoo)
He was hurting some and wanted to rest--we stayed to help him eat lunch and left out around 12:30---next visit is 2 - 4.........will update what new has happened.
Mama Hen is right about how awesome everyone is and what all is available. Only God can perform miracles and I'm pretty confident this is the place that holds many of them!!
Keep praying, love you all for the support!!
OH--he told us not to worry about decorating his ICU room because he wasn't going to be in there for long (still seeing that Justin personality and determination---slacks sometimes but we love each time we get to see it)!!
Tuesday, July 28, 2009
Rollercoaster--Tuesday
Well--who teaches whom?? We as parents were overwhelmed with today's events and a bit down ourselves with today's events. Justin has informed us tonight that we need to quit taking things so serious and lighten up.
Dad called ICU at 5:30 for an update and found out they put a TV in Justin's room with a remote that allows him to change channels and volume himself. WE also found out that his ventilator is only a partial--pushes air for him and then leaves it to him to utilize that oxygen for himself. We were also told he would be given SOLID FOOD tonight. HR was up (they gave him something to improve that but it's up).
What Justin said---he ate chicken and french fries and pudding---I'm questioning that but he is determined that he ate chicken, fries and pudding and now wants to know where his ice cream is. New nurse DeDe said he ate but couldn't confirm what but he swears chicken, fries and pudding and now wants his ice cream. They came in to give his feed tubing but he said he was FULL (they said they had to put it in anyway).
He did have a new treatment, is suppose to replace the bronch--not sure the nurse's name but we have affectionately named her Sargeant--even Justin told her she didn't have to press so hard on his ribs trying to get all that junk out of him. HE said "not so rough" and she said okay--not so hard next time. Got to love him--if they will listen to him, he will help them know what to do and what he is so very much prepared for.
We have found out that there is a pool tournament in his name tonight and next week. For those who love, pray and respect Justin---we so appreciate this in his honor. We will continue to update you all and continue to hope you all know our thoughts are full of love, gratitude and continued appreciation for the encouragement and prayers.
He wants his head, eyebrows, throat and back scratched---like a cat purring---he also needs a good bath and rinsing and Shepherd asked us to bring some of that stuff, he also asked for Q-tips. We will send mail address information tomorrow.
LOVE YOU ALL--Emmanuelle--Mama Hen--Curtis--Jessica---too many to leave out but too many that played a part--we're home sick but proud to be here!!!!!
OH SO TURNED AROUND FROM EARLIER------keep praying, because we are truly so feeling blessed and faithful this will help Justin walk again, in Jesus Name--Amen!!!!
SHEPHERD
Wow---what to day, overwhelming doesn't touch it!! The ride was safe and uneventful but took its toll on Justin--he goes back on the ventilator (for a day or two per pulminary) because they believe the ride and the congestion from the last few days is causing problems that may be a setback if not addressed now. Of course, this put him down in the dumps big time. Nurses have confirmed they will definitely try to get him in a wheelchair tomorrow regardless but we'll see. He's down, down, down---trying all we can to get his spirits lifted.
His heart rate got below 50 which is what they based their decision on and they had to suction him a few times and bag him to get SPO2 back above 90. BP looks good right now at 110/56 and they did an arterial to determine dioxide levels (I think, they are checking to see how he's using the oxygen he is getting in his blood stream).
A lot of starting over feeling right now--having to regain trust in nurses and feel out our role in this process. Justin has already made some fast friends flashing those pearly whites and dimples and already has the nutrition therapist seeing what she can do about getting him that ice cream (maybe you can call them Emannuelle--ha). He's trying to keep that chin up but the word on the ventilator really sent him down. He told us he was tired and going to sleep. Haven't seen him since 2:30. Hours of visitation are longer here but we missed afternoon time taking the tour and getting unpacked in the unit they have for us.
We see him again at 7:30 and will try to update again then. This is new for everyone and we are trying to keep positive. When we waiver in our faith, we know that we have so many praying for us---he went on another prayer list today. Thank you Russ, Ron and Lisa for doing such a great job getting us here and being so considerate and thoughtful (and for the prayers).
While we move into this new portion of the journey, I continue to pray and have faith that this is the place that will see Justin walking again (if they will just let him eat and get out of bed---he said "I rode 5 hours to get in another bed"---bless his heart!!)
Our cup(s) runneth over as do our hearts---we love you guys!! When you pray, know that we believe and have the faith this too shall pass and Justin and our entire family appreciate each of you so very much!!!! Love you all................
OH--we are in the Shepherd Center, our initial contact was with Ms. Hope, we are located in room (lucky) 13 appropriately named "The Rich Foundation"---whoever believes Justin isn't blessed to come out of this---doesn't need to come to this blogspot!!
His heart rate got below 50 which is what they based their decision on and they had to suction him a few times and bag him to get SPO2 back above 90. BP looks good right now at 110/56 and they did an arterial to determine dioxide levels (I think, they are checking to see how he's using the oxygen he is getting in his blood stream).
A lot of starting over feeling right now--having to regain trust in nurses and feel out our role in this process. Justin has already made some fast friends flashing those pearly whites and dimples and already has the nutrition therapist seeing what she can do about getting him that ice cream (maybe you can call them Emannuelle--ha). He's trying to keep that chin up but the word on the ventilator really sent him down. He told us he was tired and going to sleep. Haven't seen him since 2:30. Hours of visitation are longer here but we missed afternoon time taking the tour and getting unpacked in the unit they have for us.
We see him again at 7:30 and will try to update again then. This is new for everyone and we are trying to keep positive. When we waiver in our faith, we know that we have so many praying for us---he went on another prayer list today. Thank you Russ, Ron and Lisa for doing such a great job getting us here and being so considerate and thoughtful (and for the prayers).
While we move into this new portion of the journey, I continue to pray and have faith that this is the place that will see Justin walking again (if they will just let him eat and get out of bed---he said "I rode 5 hours to get in another bed"---bless his heart!!)
Our cup(s) runneth over as do our hearts---we love you guys!! When you pray, know that we believe and have the faith this too shall pass and Justin and our entire family appreciate each of you so very much!!!! Love you all................
OH--we are in the Shepherd Center, our initial contact was with Ms. Hope, we are located in room (lucky) 13 appropriately named "The Rich Foundation"---whoever believes Justin isn't blessed to come out of this---doesn't need to come to this blogspot!!
Atlanta bound Tuesday July 28
Last night found Justin in good spirits. HE HELD AN EMPTY CUP IN HIS RIGHT HAND WITH NO HELP (yippee).........he is excited to be moving on to Shepherd and I'm sure the nurses are glad to get rid of him (ha). We appreciate each person who played their role in this journey and will never forget you all.
We will update again once we get to Shepherd and get Justin settled in.
Our hearts overflow with gratitude and love. Keep praying..................
We will update again once we get to Shepherd and get Justin settled in.
Our hearts overflow with gratitude and love. Keep praying..................
Monday, July 27, 2009
Monday morning July 27
Dad just called and said they are having to do another bronchioscope on Justin. X-ray showed another mucous plug or congestion build-up--something. Justin is now down in the dumps feeling this will be another way to prevent him from leaving tomorrow. Mama Hen has talked with Scotty--even though she's on another patient this morning--and advised this will not prevent leaving, however, it is something that needs to be handled so there will be no set-backs once in Atlanta--hopefully once he starts getting up and about this will allow Justin to break this congestion up on his own without the invasive procedures. He will be put under mild, short-term sedation so Scotty is staying there until done. If all goes well, he will not call back and we will update at our 7:30 visit.
We love you guys and appreciate the prayers!!!
We love you guys and appreciate the prayers!!!
Sunday, July 26, 2009
Nite-time update
Well, just as I figured--everyone missed the 4:30 visit and he was awake. Said he was a wondering where everyone was. 7:30 visit seemed nice--just me, dad and Robyn. He was in good spirits, alert and ready to head to Atlanta. Said the day had been a bit rough with the percussions (that they did twice, I wasn't aware of that) but he was proud he had only had to ask for the morphine once.
BP was 106/48, HR 64, SPO2 at 99 and temp was a bit up again around 100 but he did have a blanket even though the cooling blanket was going--made me feel better that he wouldn't be shivering through the night.
He had no reservations about Shepherd and no further questions other than how soon would the traech come out and of course, how soon could he eat. The child is starving!!
Hated to leave him tonight but big day coming up--gotta sleep, work tomorrow and finalize loading the car for Tuesday. We are 36 hours from starting the next step of this journey--we continue to thank you all--family-friends-nurses--for so much encouragement, support and prayers that reaffirm Justin will come through this.
We will continue to update you all!! Love you all!!!!
BP was 106/48, HR 64, SPO2 at 99 and temp was a bit up again around 100 but he did have a blanket even though the cooling blanket was going--made me feel better that he wouldn't be shivering through the night.
He had no reservations about Shepherd and no further questions other than how soon would the traech come out and of course, how soon could he eat. The child is starving!!
Hated to leave him tonight but big day coming up--gotta sleep, work tomorrow and finalize loading the car for Tuesday. We are 36 hours from starting the next step of this journey--we continue to thank you all--family-friends-nurses--for so much encouragement, support and prayers that reaffirm Justin will come through this.
We will continue to update you all!! Love you all!!!!
1:30 visit
1:30 found him sleeping again. BP at 110/35 HR 56 and SPO2 undecided between 99 & 100 (whoopie). He had requested morphine around lunch because respiratory came in this morning and did another percussion treatment. Nurse Alisa said this morning's chest x-ray showed some congestion so they are trying to loosen it up to make it easier to suction out of him. The percussion makes him hurt and he told her as much. This should not interfere with his transport to Atlanta, which was confirmed by the Ambulance carrier this afternoon.
The ambulance coordinator called and they will arrive in Dothan tomorrow night and anticipate a 6 a.m. departure time for Shepherd (woohoo). I will be allowed to ride upfront with them and Scotty will follow in the car.
Will continue to update and once again thank you all for the encouragement, support and prayers.
The ambulance coordinator called and they will arrive in Dothan tomorrow night and anticipate a 6 a.m. departure time for Shepherd (woohoo). I will be allowed to ride upfront with them and Scotty will follow in the car.
Will continue to update and once again thank you all for the encouragement, support and prayers.
Deja Vue-Sunday 7/26
Sunday morning visit found Justin sleeping again. BP was 94/48, HR 64 and SPO2 is back up to 97 (yippee). He had a small temp and was on the cooling blanket, thinking he may have gotten a higher temp during the night--not sure though.
I haven't heard from Peetlebug about last night's 7:30 visit but certain that if it wasn't a good one she would have called. Also hope she is feeling better today--hasn't been feeling so hot last few days.
We will continue to update, may be just once daily when the Shepherd journey begins but will keep everyone posted. Thanks again for all the prayers and support.
I haven't heard from Peetlebug about last night's 7:30 visit but certain that if it wasn't a good one she would have called. Also hope she is feeling better today--hasn't been feeling so hot last few days.
We will continue to update, may be just once daily when the Shepherd journey begins but will keep everyone posted. Thanks again for all the prayers and support.
Saturday, July 25, 2009
Saturday afternoon update
1:30 started out with dozing--he had 2 extra visitors (thank you Amanda and Alicia) that he did decide to wake up for and hold brief small talk to (brief but he was awake). Not sure if he's just tired or down or what---another day of wondering, the rollercoaster affect!!
4:30 found him a bit agitated--he was uncomfortable and annoyed we weren't understanding what he needed but we finally got the message and got his nurse "Red" (affection only meant) to come in and shift him--he said he felt his body was 'twisted' in the bed---she made some rearrangements of his body and head, suctioned his traech and stayed with him to monitor his SPO2 since it had dropped down to 80.
We had another visitor show up shortly thereafter which excused me from visitation and allowed her in so I wasn't in the room for the remainder of the visit. I was advised by Robyn that respiratory was in there when she left because his SPO2 had dropped back down and they were suctioning and "doing something else" because he had been maintaining 95 or better and had dropped down in the 80s again.
There were a few brief moments that his lower body continues to respond to a knee touch or a finger to the bottom of his foot--even though he says he cannot always feel that hand or finger. We continue to believe this will ultimately result in full sensational feeling and with rehab--strengthening that will help regain full use!!
While I feel I should be there every visit, I confirmed he will have 7:30 visitors so I am currently at home in attempts to update you all, get a game-plan for Tuesday and start preparations to pack clothes, what-nots and any other thing we can think he or we might need. Robyn has indicated she will let us know how tonight's visit is and we'll update on that.
TO THE NURSES who sent the balloon, card and inspirational book---we THANK YOU all so much. Another moment in which words can never express our gratitude. I do not wish tragedy on anyone; yet for those that have been there--you know the feeling that can't be described only felt-the one that wants to shout in rapture so the world shakes from the emotion that words cannot express. I will never truly feel that I have given to those that given so much to us!! God bless you all for being a part of this journey we've had to travel........we may never remember all of your names but we will forever remember what you have done for us and our son Justin!
******I would like to take this time to ask all of those who have offered "anything we can do" to do something--there's a young man, down the hall from Justin, who is 20 or 21-not sure, who came in due to what I'll call "horse-play"--I'll refer to him as Vin (as in Vin Diesel--ha ha). It's been hard knowing all the specifics because he and Justin are so close in age and similar in a child's mistake that I've not been able to approach his mom with concern or updates. It is of my understanding today that he has not seen as many improvements that we have so been blessed with. Please pray to God that his family will receive the blessings that we have, find the strength and courage to endure, heal him of his injuries and bring him back to his family. In Jesus name, Amen!!
We continue to thank you all for the love, support, concern and prayer!!
4:30 found him a bit agitated--he was uncomfortable and annoyed we weren't understanding what he needed but we finally got the message and got his nurse "Red" (affection only meant) to come in and shift him--he said he felt his body was 'twisted' in the bed---she made some rearrangements of his body and head, suctioned his traech and stayed with him to monitor his SPO2 since it had dropped down to 80.
We had another visitor show up shortly thereafter which excused me from visitation and allowed her in so I wasn't in the room for the remainder of the visit. I was advised by Robyn that respiratory was in there when she left because his SPO2 had dropped back down and they were suctioning and "doing something else" because he had been maintaining 95 or better and had dropped down in the 80s again.
There were a few brief moments that his lower body continues to respond to a knee touch or a finger to the bottom of his foot--even though he says he cannot always feel that hand or finger. We continue to believe this will ultimately result in full sensational feeling and with rehab--strengthening that will help regain full use!!
While I feel I should be there every visit, I confirmed he will have 7:30 visitors so I am currently at home in attempts to update you all, get a game-plan for Tuesday and start preparations to pack clothes, what-nots and any other thing we can think he or we might need. Robyn has indicated she will let us know how tonight's visit is and we'll update on that.
TO THE NURSES who sent the balloon, card and inspirational book---we THANK YOU all so much. Another moment in which words can never express our gratitude. I do not wish tragedy on anyone; yet for those that have been there--you know the feeling that can't be described only felt-the one that wants to shout in rapture so the world shakes from the emotion that words cannot express. I will never truly feel that I have given to those that given so much to us!! God bless you all for being a part of this journey we've had to travel........we may never remember all of your names but we will forever remember what you have done for us and our son Justin!
******I would like to take this time to ask all of those who have offered "anything we can do" to do something--there's a young man, down the hall from Justin, who is 20 or 21-not sure, who came in due to what I'll call "horse-play"--I'll refer to him as Vin (as in Vin Diesel--ha ha). It's been hard knowing all the specifics because he and Justin are so close in age and similar in a child's mistake that I've not been able to approach his mom with concern or updates. It is of my understanding today that he has not seen as many improvements that we have so been blessed with. Please pray to God that his family will receive the blessings that we have, find the strength and courage to endure, heal him of his injuries and bring him back to his family. In Jesus name, Amen!!
We continue to thank you all for the love, support, concern and prayer!!
July 25 Saturday morning
Temp was at 100, BP 95/48 with SPO2 at 90. His nurse was on the phone when I arrived and never came into the room while I was there this morning; she was speaking with 3 other nurses when I left so I was unable to get an update on how the night went. I'm thinking okay or hopefully someone would have taken the time to notify us.
He was resting during this visit so I pretty much watched him breathe--when I wasn't glancing up and watching Godzilla attack New York on TV. He opened his eyes twice and last time I just told him I would be back in a bit and he nodded okay.
I'll update again this afternoon. Will be a busy 3 days visiting and getting him packed for Shepherd (yeah)!
Love you all..............
He was resting during this visit so I pretty much watched him breathe--when I wasn't glancing up and watching Godzilla attack New York on TV. He opened his eyes twice and last time I just told him I would be back in a bit and he nodded okay.
I'll update again this afternoon. Will be a busy 3 days visiting and getting him packed for Shepherd (yeah)!
Love you all..............
Friday, July 24, 2009
Friday News----JLM
I guess this should be called the late edition of Friday's update.
First: Thank you again to Emmanuelle........I've read your comments twice and tear up each time. Someone else could not only feel & care for but put time into comforting family & friends with such kind remarks and encouragement. You know the Justin in that bed; I hope you will soon know the Justin we know--the humor, commitment, daddy, brother, co-worker, son, hard-head-dimples and pearly-whites that have influenced so many to come together and pray. We cannot thank you enough for the role you have played through this moment in our lives. Please do not ever give up the compassion that put you in this profession and I think you would be an excellent teacher so that more nurses will understand the role they play to both patient and family. May God bless you in the road you have yet to travel.
Mama Hen---thank you!!! As a mama, I hope you know that you have been appreciated!!
Next I feel I must Thank ALL the nurses that have played their part in the past 22 days of my son's life at SAMC. While some names we will not remember and others were given nick-names, you were the instruments that allow me to report today the miraculous recoveries we experience everyday. Our son is still here, he is inspiring others and determined to find his way through this. From ER staff on day one, to anesthesia team twice, to daily nurses to night nurses to staff nurses taking the time to explain procedures--pulminary, or respiratory, physical therapy or occupational, or even those Wallace students fixing to graduate in December, we Thank each of you with sincere gratitude.
Apologies are extended to any nurse we nick-named and possibly offended. As any of you should know, when faced with tragedy--the mind works mysteriously. We found sanity in humor and meant no harm---we recognize faces more so than names but we know each of you, by who made a phone call, who explained a procedure, who was 'by-the-books' versus who bent the rules, who made Justin 'tear up' and who just down right made him mad. We appreciate each of you for putting Justin first---what mattered the most!!! Affection and humor called out to nick-names such "short s**t", "Atilla the Hunh", "Stiff lip", "Mama Hen", "Red" and others. We will forever be indepted to all of you---whether we know you as Mindy, Emmanuelle, Bea or simply a face we recognize yet can't remember the name on that tag on your uniform. I sincerely hope our gratitude has been deeply expressed and Justin's determination is shown as a result of your efforts.
As of tonight, 1:30 was just me and him---boring as always. I've tried telling him that I'm mama, work-hospital-no gossip, just boring mama.
4:30 was a scary start--Robyn & I showed up and he seemed just blah--no response, no motivation, no care--he said he was okay and nothing happened but it worried me. Nurse said she noticed his mood but played it off as reality, time to think about things, still worried us. He had a few friends show up before close of visitation and Justin became himself again (thank you Shaggy). He was joking and responsive. We were eventually ran out of the room around 5:20 but not before Justin asked if I would feel his feet----he said he didn't feel anything but when I moved up towards his knee he said yes to both knee and under-knee area feeling.
7:30 visit had entertainment. We all walked into his room with him lifting arms, waving them about showing us he had movement. He had a few leg spasms that he said he didn't do but were clearly obvious. He was given some more water through a straw and seemed to smack his lips a few times in enjoyment. More of Justin's personality showed up this time. He clearly expressed that he knew he would walk again. He said "I will walk again" and nodded!!
Thank you all for the prayers, support and encouragement!! We love you all and pray that God will heal Justin's injuries so that he will walk again, in Jesus name-Amen.
I'm sure I've left out something but will get it tomorrow. OH--he goes to Shepherd 6a.m. Tuesday morning. Love you all!!
First: Thank you again to Emmanuelle........I've read your comments twice and tear up each time. Someone else could not only feel & care for but put time into comforting family & friends with such kind remarks and encouragement. You know the Justin in that bed; I hope you will soon know the Justin we know--the humor, commitment, daddy, brother, co-worker, son, hard-head-dimples and pearly-whites that have influenced so many to come together and pray. We cannot thank you enough for the role you have played through this moment in our lives. Please do not ever give up the compassion that put you in this profession and I think you would be an excellent teacher so that more nurses will understand the role they play to both patient and family. May God bless you in the road you have yet to travel.
Mama Hen---thank you!!! As a mama, I hope you know that you have been appreciated!!
Next I feel I must Thank ALL the nurses that have played their part in the past 22 days of my son's life at SAMC. While some names we will not remember and others were given nick-names, you were the instruments that allow me to report today the miraculous recoveries we experience everyday. Our son is still here, he is inspiring others and determined to find his way through this. From ER staff on day one, to anesthesia team twice, to daily nurses to night nurses to staff nurses taking the time to explain procedures--pulminary, or respiratory, physical therapy or occupational, or even those Wallace students fixing to graduate in December, we Thank each of you with sincere gratitude.
Apologies are extended to any nurse we nick-named and possibly offended. As any of you should know, when faced with tragedy--the mind works mysteriously. We found sanity in humor and meant no harm---we recognize faces more so than names but we know each of you, by who made a phone call, who explained a procedure, who was 'by-the-books' versus who bent the rules, who made Justin 'tear up' and who just down right made him mad. We appreciate each of you for putting Justin first---what mattered the most!!! Affection and humor called out to nick-names such "short s**t", "Atilla the Hunh", "Stiff lip", "Mama Hen", "Red" and others. We will forever be indepted to all of you---whether we know you as Mindy, Emmanuelle, Bea or simply a face we recognize yet can't remember the name on that tag on your uniform. I sincerely hope our gratitude has been deeply expressed and Justin's determination is shown as a result of your efforts.
As of tonight, 1:30 was just me and him---boring as always. I've tried telling him that I'm mama, work-hospital-no gossip, just boring mama.
4:30 was a scary start--Robyn & I showed up and he seemed just blah--no response, no motivation, no care--he said he was okay and nothing happened but it worried me. Nurse said she noticed his mood but played it off as reality, time to think about things, still worried us. He had a few friends show up before close of visitation and Justin became himself again (thank you Shaggy). He was joking and responsive. We were eventually ran out of the room around 5:20 but not before Justin asked if I would feel his feet----he said he didn't feel anything but when I moved up towards his knee he said yes to both knee and under-knee area feeling.
7:30 visit had entertainment. We all walked into his room with him lifting arms, waving them about showing us he had movement. He had a few leg spasms that he said he didn't do but were clearly obvious. He was given some more water through a straw and seemed to smack his lips a few times in enjoyment. More of Justin's personality showed up this time. He clearly expressed that he knew he would walk again. He said "I will walk again" and nodded!!
Thank you all for the prayers, support and encouragement!! We love you all and pray that God will heal Justin's injuries so that he will walk again, in Jesus name-Amen.
I'm sure I've left out something but will get it tomorrow. OH--he goes to Shepherd 6a.m. Tuesday morning. Love you all!!
Friday morning
Thank you Emmanuelle----I told everyone how sweet you were!! We'll miss you.........
Dad said his morning visit was a good visit, he had good spirits-was laughing and joking with them (MeeMaw and PaPa showed up too). His BP was a bit low but his dad's trying not to worry over that and they still had him on the cooling blanket even though his temp was down to 96.5 and he was shivering--dad covered him with a blanket.
Justin said the night nurse-Curtis-let him drink some water through a straw so that is very encouraging and reiterates what Nurse Emmanuelle was saying about swallowing his own spit--he can do it if he puts his determination to it----also gets him closer to feeling real food in his belly.
I didn't get any other stats so I'll update this evening when I can.
Thank you all for the thoughts, prayers and helping us keep some humor through all of this----that is truly what Justin and Robyn's spirits have always been about, loving life and laughing as often as you can---even if it means laughing at yourself!! I know where my many blessings are...
Dad said his morning visit was a good visit, he had good spirits-was laughing and joking with them (MeeMaw and PaPa showed up too). His BP was a bit low but his dad's trying not to worry over that and they still had him on the cooling blanket even though his temp was down to 96.5 and he was shivering--dad covered him with a blanket.
Justin said the night nurse-Curtis-let him drink some water through a straw so that is very encouraging and reiterates what Nurse Emmanuelle was saying about swallowing his own spit--he can do it if he puts his determination to it----also gets him closer to feeling real food in his belly.
I didn't get any other stats so I'll update this evening when I can.
Thank you all for the thoughts, prayers and helping us keep some humor through all of this----that is truly what Justin and Robyn's spirits have always been about, loving life and laughing as often as you can---even if it means laughing at yourself!! I know where my many blessings are...
Thursday, July 23, 2009
Evening News with JLM
Tonight's vitals had BP at 93/47, SPO2 at 94 and HR at 75 with slight fever around 99.2.
4:30 visit was quiet, he was resting when his Aunt Ruth, 'Uncle' Ken and I showed up but was responsive enough to interject head knods or a few words into the conversations. He said "Major" showed up and said he still had a job "for now" which is encouraging news in itself. We left him to rest at 5:00
Our 7:30 visit found him a bit more agitated with his 3-11 shift nurse (I call her scatter-brain and apparently it fits great). Justin said "she's nice and all but she's f*****g stupid". He said he almost choked--as in couldn't breathe--three times under her 4 hour watch by her being so rough with trying to suction him. Dad's going to be making a call to make sure he's carefully watched the rest of her shift. Too bad Mama Hen and Nurse Emmanuella can't be on round the clock shifts just for Justin!!
Justin can get irritated yet doesn't quickly complain about nurses to the point of wanting them to leave him alone and not touch him anymore. I don't like having to leave him when he clearly expresses bad vibes with the nurses.
While he stated he was okay, he wasn't as upbeat as we've seen him in the past few days and more reserved with his responses (not much Justin joking tonight). We stayed roughly 45 minutes hating to leave so early even though he assured us he was okay and would be okay.
Hopefully Tuesday will get here before we know it and he'll be on his journey to recovery (although we've been advised there will be many times at Shepherd that they too will make him mad--ha ha).
As always, we appreciate all the comments, concerns, support and prayers. Continue to pray that God will heal his injuries, renew his faith-strength-courage so that he will recover and walk again, in Jesus name-Amen!!
Special hugs to Peetlebug--love you!!! And we love all of you, your caring touches our hearts!!
4:30 visit was quiet, he was resting when his Aunt Ruth, 'Uncle' Ken and I showed up but was responsive enough to interject head knods or a few words into the conversations. He said "Major" showed up and said he still had a job "for now" which is encouraging news in itself. We left him to rest at 5:00
Our 7:30 visit found him a bit more agitated with his 3-11 shift nurse (I call her scatter-brain and apparently it fits great). Justin said "she's nice and all but she's f*****g stupid". He said he almost choked--as in couldn't breathe--three times under her 4 hour watch by her being so rough with trying to suction him. Dad's going to be making a call to make sure he's carefully watched the rest of her shift. Too bad Mama Hen and Nurse Emmanuella can't be on round the clock shifts just for Justin!!
Justin can get irritated yet doesn't quickly complain about nurses to the point of wanting them to leave him alone and not touch him anymore. I don't like having to leave him when he clearly expresses bad vibes with the nurses.
While he stated he was okay, he wasn't as upbeat as we've seen him in the past few days and more reserved with his responses (not much Justin joking tonight). We stayed roughly 45 minutes hating to leave so early even though he assured us he was okay and would be okay.
Hopefully Tuesday will get here before we know it and he'll be on his journey to recovery (although we've been advised there will be many times at Shepherd that they too will make him mad--ha ha).
As always, we appreciate all the comments, concerns, support and prayers. Continue to pray that God will heal his injuries, renew his faith-strength-courage so that he will recover and walk again, in Jesus name-Amen!!
Special hugs to Peetlebug--love you!!! And we love all of you, your caring touches our hearts!!
Thursday, July 23 2009
Morning visit had Justin alert and responsive. He had his dad, Aunt Carol & Uncle Charles as visitors. Dad says he was doing good. Doc says he will come off of the ventilator 100% now but will keep the traech for precautionary purposes. We think this is wise and will remain until after his transport and Shepherd has a chance to evaluate him. Justin personality still showing and acting like "Chrissy when you scratch her belly" (Chrissy is our dog--thank you Mary). He had an itch and once dad found the right spot, Justin was 'puddy in his hands'.
BP high side was up from 84 last night to 105 this morning and SPO2 maintaining above 95. Fever was down to 99 low grade and Melinda (Mama Hen) nurse is caring for him day shift. We have advised her of her nick-name and she's okay with it. She steps in when we can't be there and gives us a good feeling that she'll keep an eye on him for us. Justin may feel a bit like he's got two mamas now but he'll just have to suck it up and get over it (ha ha). She's going to try to get him a way to get an online tour of the Shepherd facility and he seemed to like that idea.
Missed the 1:30 visit---had some rough weather showing on radar (at home too with wind, rain and ligthning) and his dad didn't want me attempting to get through it to get to Dothan. I called the hospital and "mama hen" (affection only noted here) said she would let him know that "mama is only being safe". We will see him at the 4:30 and pray we continue to report improvements and great attitude.
He has some pre-accident memories coming back and obvious questions---some of which will take some time to fill in all of the time-lines and events, yet he seems to be gaining his focus, strength and will-power to overcome this and recover.
For everyone, we continue to sincerely appreciate the concerns and prayers that God will heal his injuries, hear our prayers and Justin will walk again. Thank you all for the support!!!
Love you all!!
BP high side was up from 84 last night to 105 this morning and SPO2 maintaining above 95. Fever was down to 99 low grade and Melinda (Mama Hen) nurse is caring for him day shift. We have advised her of her nick-name and she's okay with it. She steps in when we can't be there and gives us a good feeling that she'll keep an eye on him for us. Justin may feel a bit like he's got two mamas now but he'll just have to suck it up and get over it (ha ha). She's going to try to get him a way to get an online tour of the Shepherd facility and he seemed to like that idea.
Missed the 1:30 visit---had some rough weather showing on radar (at home too with wind, rain and ligthning) and his dad didn't want me attempting to get through it to get to Dothan. I called the hospital and "mama hen" (affection only noted here) said she would let him know that "mama is only being safe". We will see him at the 4:30 and pray we continue to report improvements and great attitude.
He has some pre-accident memories coming back and obvious questions---some of which will take some time to fill in all of the time-lines and events, yet he seems to be gaining his focus, strength and will-power to overcome this and recover.
For everyone, we continue to sincerely appreciate the concerns and prayers that God will heal his injuries, hear our prayers and Justin will walk again. Thank you all for the support!!!
Love you all!!
Wednesday, July 22, 2009
Wed. 7/22/09
Stats first---as of last visit BP was 84/45 (nurse said not to worry over that but I do), SPO2 at 94, which as stated, this is still great considering we are only on day 2 of breathing without the ventilator. They did put him back on the ventilator last night and again this evening. We have found out it is standard procedure to do 12 hours off then 12 hours on. He has come too far to risk a set-back, this is precautionary and routine only. HR went up to around 80 tonight but he was a bit agitated with day nurse and had more visitors than earlier, PLUS he had to put up with me trying to shave him (ha).
He actually asked at 1:30 to be shaved, said not a skin shave--"can leave some stubble". AND of course, he's hungry. 1:30 was quiet, just me and him. 4:30 he asked about shaving again and advised he has figured out what he wants to eat first, Tagalong Blizzard, Peanut Butter milkshake, ANYTHING chocolate, chocolate and chocolate. All the commercials today must have been food commercials and a lot of them about ice cream, chocolate and peanut butter. He actually wanted to know how soon after getting to Shepherd can he eat. I told him that was one question I didn't think to ask but I would put it on my list for next time I have to talk with them.
He was a bit perturbed to find out it will be Tuesday getting him transferred. He was so hoping for Friday, Saturday at the latest and had a few choice words. Got a bit down and went to saying it would be another 2 weeks at SE but I told him that Ms. Hope said first bed is available Tuesday (may be Wednesday only if they cannot get an early enough start on the transfer).
GREAT NEWS is when night nurse (Emmanuella--I hope I'm spelling that right) came in for meds and routine checks, he FELT HER TOUCHING HIS LEFT FOOT!!! It didn't last long but was thrilling enough even the nurse said "hell yeah". HE is the one that told her he could feel it and asked her to do it again. When she took his 'boot' off and tried again he said no but we all saw it the first time. Earlier Robyn had touched his left knee and it made his leg jump. The nurse said it was all a very positive sign. While Shepherd has said no one has a crystal ball and they tend to ere on caution rather than say a patient will walk again, everyone is pleased with his progress to date and no one can deny the possibility of recovery (even if it takes time). We continue to pray and we know that all of you are as well.
Shepherd is working on final pre-certification and admissions plans. They expect it to be possibly a 6 week stay. It is anticipated we will be there the first week, second week, come home for two weeks then go back for the final two weeks, that is when we ALL get that final intensive training on progress and what his needs will be upon release. They have a website that gives a 'virtual tour' should anyone wish to check it out. Very, very reputable and truly hands on with their therapy (in physical, emotional and community respects). This is the next positive step for Justin. He will have a team of specialists that only deal with 5-10 maximum patients at any given time.
He can whisper some but mainly still mouthing words (and plenty of them)--and can still get frustrated if you can't understand him BUT I certainly understood when he told me--"you suck at this", of course there was much affection when he said that (lol). Spirits seemed good, gets down slightly because he wants out of SE and on to the next level, ready to get things going and says some of the nurses there are rougher than others, hurt him when doing some of the routine things (I can't begin to imagine what it must be like for him). I just know that right now, today was a good day, real good day.
He is still in the same room in CCU and is expected to remain there until his transfer next week. I will continue to update even after the transfer and appreciate the continued prayers, concerns and support.
LT/Barton---Thanks for the letter Tuesday, he saw it on the wall and asked me to read it and immediately knew who it was from, made him laugh, especially "that's an order" part.
We continue to thank you all so very much from the bottom of our hearts and through our prayers for so much support. We love you all!!!
He actually asked at 1:30 to be shaved, said not a skin shave--"can leave some stubble". AND of course, he's hungry. 1:30 was quiet, just me and him. 4:30 he asked about shaving again and advised he has figured out what he wants to eat first, Tagalong Blizzard, Peanut Butter milkshake, ANYTHING chocolate, chocolate and chocolate. All the commercials today must have been food commercials and a lot of them about ice cream, chocolate and peanut butter. He actually wanted to know how soon after getting to Shepherd can he eat. I told him that was one question I didn't think to ask but I would put it on my list for next time I have to talk with them.
He was a bit perturbed to find out it will be Tuesday getting him transferred. He was so hoping for Friday, Saturday at the latest and had a few choice words. Got a bit down and went to saying it would be another 2 weeks at SE but I told him that Ms. Hope said first bed is available Tuesday (may be Wednesday only if they cannot get an early enough start on the transfer).
GREAT NEWS is when night nurse (Emmanuella--I hope I'm spelling that right) came in for meds and routine checks, he FELT HER TOUCHING HIS LEFT FOOT!!! It didn't last long but was thrilling enough even the nurse said "hell yeah". HE is the one that told her he could feel it and asked her to do it again. When she took his 'boot' off and tried again he said no but we all saw it the first time. Earlier Robyn had touched his left knee and it made his leg jump. The nurse said it was all a very positive sign. While Shepherd has said no one has a crystal ball and they tend to ere on caution rather than say a patient will walk again, everyone is pleased with his progress to date and no one can deny the possibility of recovery (even if it takes time). We continue to pray and we know that all of you are as well.
Shepherd is working on final pre-certification and admissions plans. They expect it to be possibly a 6 week stay. It is anticipated we will be there the first week, second week, come home for two weeks then go back for the final two weeks, that is when we ALL get that final intensive training on progress and what his needs will be upon release. They have a website that gives a 'virtual tour' should anyone wish to check it out. Very, very reputable and truly hands on with their therapy (in physical, emotional and community respects). This is the next positive step for Justin. He will have a team of specialists that only deal with 5-10 maximum patients at any given time.
He can whisper some but mainly still mouthing words (and plenty of them)--and can still get frustrated if you can't understand him BUT I certainly understood when he told me--"you suck at this", of course there was much affection when he said that (lol). Spirits seemed good, gets down slightly because he wants out of SE and on to the next level, ready to get things going and says some of the nurses there are rougher than others, hurt him when doing some of the routine things (I can't begin to imagine what it must be like for him). I just know that right now, today was a good day, real good day.
He is still in the same room in CCU and is expected to remain there until his transfer next week. I will continue to update even after the transfer and appreciate the continued prayers, concerns and support.
LT/Barton---Thanks for the letter Tuesday, he saw it on the wall and asked me to read it and immediately knew who it was from, made him laugh, especially "that's an order" part.
We continue to thank you all so very much from the bottom of our hearts and through our prayers for so much support. We love you all!!!
Tuesday, July 21, 2009
Tuesday update
We are 12 hours, 44 minutes into Justin breathing on his own. They will not be putting him back on the ventilator tonight. His progress has been good with no set-backs so they will monitor him through the night. Should he continue his progress, he may actually stay off the ventilator and eventually have the traech removed.
His BP was 111/48 as of last visit, his SPO2 was 95 (remember 100 is perfect, between 95-100 is awesome for him breathing on his own for the first time in 18 days). HR was 70. He did have a fever spike to 103 but that has been reduced down to 98.5 with tylenol and the cooling blanket. He was complaining of being cold even with the 98.5 and can't have blankets because of the prior fever, but we keep him covered with the sheet. That seems to help him some.
His spirits were good at 4:30, a lot of Justin personality and joking. We were allowed to stay until almost 6:00. He said some of the nurses are rough but he really liked the night nurse he had tonight (Emmanuelle---hope she doesn't mind me blogging her name). She said "of course he likes me!! And I like him too!!" The 7:30 visit was quieter, he seemed tired even though he said he wasn't. By visit's end he said he was tired, wanted to rest and asked to have the lights out.
He is still asking for FOOD (and every commercial on TV seems to be about FOOD). The latest joke is we will put a sign on his window saying "don't feed the animal, he may bite your finger" (ha ha).
Sheppard has already contacted the hospital for information pertaining to his transfer. It appears this may start moving fast and he may actually get to the rehab he so needs.
Also, we have been informed that Justin is now International---prayers have extended into England for Justin's recovery and healing. We thank you all for the support, prayers and continued encouragements. Words will never express what we feel in our hearts!!
For my Peetlebug----We Love You!!!! We are here for you too!!!!!!
My Prayer is for the Healing Hands of God to reach all of us, to help with the trials we endure, to lift up those whose families are in CCU waiting room praying for the loved ones in CCU rooms, that God will heal Justin's infections, lungs, spinal cord, arms, wrists, hands, fingers, hips, legs, knees, ankles, feet and toes so that he will walk again, asked in Jesus' name, Amen.
For the many blessings we have received, we are eternally grateful!!
We love you guys and appreciate the prayers..........
His BP was 111/48 as of last visit, his SPO2 was 95 (remember 100 is perfect, between 95-100 is awesome for him breathing on his own for the first time in 18 days). HR was 70. He did have a fever spike to 103 but that has been reduced down to 98.5 with tylenol and the cooling blanket. He was complaining of being cold even with the 98.5 and can't have blankets because of the prior fever, but we keep him covered with the sheet. That seems to help him some.
His spirits were good at 4:30, a lot of Justin personality and joking. We were allowed to stay until almost 6:00. He said some of the nurses are rough but he really liked the night nurse he had tonight (Emmanuelle---hope she doesn't mind me blogging her name). She said "of course he likes me!! And I like him too!!" The 7:30 visit was quieter, he seemed tired even though he said he wasn't. By visit's end he said he was tired, wanted to rest and asked to have the lights out.
He is still asking for FOOD (and every commercial on TV seems to be about FOOD). The latest joke is we will put a sign on his window saying "don't feed the animal, he may bite your finger" (ha ha).
Sheppard has already contacted the hospital for information pertaining to his transfer. It appears this may start moving fast and he may actually get to the rehab he so needs.
Also, we have been informed that Justin is now International---prayers have extended into England for Justin's recovery and healing. We thank you all for the support, prayers and continued encouragements. Words will never express what we feel in our hearts!!
For my Peetlebug----We Love You!!!! We are here for you too!!!!!!
My Prayer is for the Healing Hands of God to reach all of us, to help with the trials we endure, to lift up those whose families are in CCU waiting room praying for the loved ones in CCU rooms, that God will heal Justin's infections, lungs, spinal cord, arms, wrists, hands, fingers, hips, legs, knees, ankles, feet and toes so that he will walk again, asked in Jesus' name, Amen.
For the many blessings we have received, we are eternally grateful!!
We love you guys and appreciate the prayers..........
9:19a.m. Tuesday 7/21
As of 9:19 a.m. Tuesday July 21, 2009 Justin is breathing on his own with no assistance from a ventilator. The traech went well and remains for emergency purposes. They may rehook him to the breathing machine tonight simply as precautionary. His vitals are good--temp maintaining around 97.3 which is pretty close to normal for him, like his dad the kids usually are normal at 97.6 not 98.6. BP was 109/48--this runs a risk of dropping once they try to start sitting him up, normal reaction to the trauma and laying for extended periods of time, put physical therapy stated they are used to it and will work at a slower pace on getting him up but will continue to be aggressive on arms and legs until that time. HR was averaging 69-70 this morning.
Dr. Woodham has stated this morning that getting him to Sheppard Center quickly is a must. Sheppard is the leading spinal cord injury rehabilitation center and both neurology & pulminary have said today that getting him there now is beneificial. The hospital has indicated it could be as soon as this weekend. They have an intense program that will require we be there for a few days and will definitely require Justin to give all that he's got.
Justin's spirits seemed good, he did have some more questions that we tried to answer honestly. His main question was would he 'be 100% when he came home from Sheppard'--of course, we explained the doctors say 5% recovery but that it would be up to him and God to work on the other 95%--miracles happen and 7 states continue to pray for him. He appears to have the determination and acknowledges not to give up his faith and drive. We reminded him his upper body has improved in just the last week so the rest of it can and will come back, just at a slower pace that what our "impatience" wants to see (ha ha).
And, he's also hungry--he wants real food, doesn't care what it is, just real food--something he can chew and taste and feel full from. You just gotta love him!!!
He can mouth his sentences to you now and sometimes we have to say 'slow down' (AMANDA), but that too helps so much in being able to better communicate. Cuts down on some of the frustration which was not good for his recovery. All things are improving and with the many prayers on his behalf, they will continue to improve until the day Justin walks again.
Thank you all again!!! We love you guys!
Dr. Woodham has stated this morning that getting him to Sheppard Center quickly is a must. Sheppard is the leading spinal cord injury rehabilitation center and both neurology & pulminary have said today that getting him there now is beneificial. The hospital has indicated it could be as soon as this weekend. They have an intense program that will require we be there for a few days and will definitely require Justin to give all that he's got.
Justin's spirits seemed good, he did have some more questions that we tried to answer honestly. His main question was would he 'be 100% when he came home from Sheppard'--of course, we explained the doctors say 5% recovery but that it would be up to him and God to work on the other 95%--miracles happen and 7 states continue to pray for him. He appears to have the determination and acknowledges not to give up his faith and drive. We reminded him his upper body has improved in just the last week so the rest of it can and will come back, just at a slower pace that what our "impatience" wants to see (ha ha).
And, he's also hungry--he wants real food, doesn't care what it is, just real food--something he can chew and taste and feel full from. You just gotta love him!!!
He can mouth his sentences to you now and sometimes we have to say 'slow down' (AMANDA), but that too helps so much in being able to better communicate. Cuts down on some of the frustration which was not good for his recovery. All things are improving and with the many prayers on his behalf, they will continue to improve until the day Justin walks again.
Thank you all again!!! We love you guys!
Monday, July 20, 2009
Traech day
Well---morning started typical. We were allowed in early and allowed to stay with him until surgery time. They did all his antibiotic meds at 9:30, did his physical therapy around 10:30 and anesthesia came in shortly after that to prep him and transport. He was awake and responsive, same Justin by way of not as perky as we've seen but responsive, had no questions prior to surgery, did physical and occupational therapy. OT said he had good bicep and tricep reaction that he didn't have last week and some slight movement of his own in his lift wrist (not so much in right one but she said that would come to him with time). PT did his lower legs which Justin indicated still no sensation; however, he could feel pressure in his abdominal area from the leg movements. All of these things we take as a positive that rehab will be an enormous help to his recovery.
We were advised verbally that he will be covered for rehab and are waiting for written notice to the hospital so they can proceed with Sheppard Center in Altanta, the most reputable rehab center in the nation that specializes in spinal injury. Justin has not been given this good news yet because he was still in surgery when the call came in. The hospital case worker has indicated this week will be primarily to wein him from the breathing machine, get him in a floor room not CCu and get up his strength for the transfer to GA.
He was back in his room after surgery around 1:30 but didn't want visitors, not even mom & dad. The nurse said he did good, was having slight trouble adapting to the traech but overall good. We had business in Daleville so I called back when done at 3:30 and his day nurse, Joannie, was checking out but advised he was in pain, still didn't want visitors but was doing overall good. Some minor changes to meds, etc which is common after the traech but she had hopes he would feel better once he adjusts.
Stats were good this morning but am unable to report on them right now, I am only able to take the nurse's word that he is good just in pain. We've pondered over hoping Justin understands this was the step to take to get to the next level and hope while he is in pain now, that he knows that too shall pass and recovery will come faster now. Will update further when he feels up to letting us back in the room.
Keep praying---the blessings are evident!!!
We were advised verbally that he will be covered for rehab and are waiting for written notice to the hospital so they can proceed with Sheppard Center in Altanta, the most reputable rehab center in the nation that specializes in spinal injury. Justin has not been given this good news yet because he was still in surgery when the call came in. The hospital case worker has indicated this week will be primarily to wein him from the breathing machine, get him in a floor room not CCu and get up his strength for the transfer to GA.
He was back in his room after surgery around 1:30 but didn't want visitors, not even mom & dad. The nurse said he did good, was having slight trouble adapting to the traech but overall good. We had business in Daleville so I called back when done at 3:30 and his day nurse, Joannie, was checking out but advised he was in pain, still didn't want visitors but was doing overall good. Some minor changes to meds, etc which is common after the traech but she had hopes he would feel better once he adjusts.
Stats were good this morning but am unable to report on them right now, I am only able to take the nurse's word that he is good just in pain. We've pondered over hoping Justin understands this was the step to take to get to the next level and hope while he is in pain now, that he knows that too shall pass and recovery will come faster now. Will update further when he feels up to letting us back in the room.
Keep praying---the blessings are evident!!!
Sunday, July 19, 2009
Afternoon visits were good. We continued with his physical therapy and continued to see his 'knee-jerk' reactions. Some of the nurses made me feel as though that was a normal reaction and no change on paralysis but we continue to keep the faith that it all is a positive, that he will regain feeling and walk again. While he states he can't feel the sensation of touch he did recognize his body was reacting and we were all very tickled. His spirits seemed better, they've changed his meds--no morphine, changed to Robox (???)--muscle relaxer and Loritab10 for pain. The Loritab puts him in what I call LaLa land--that don't really give a sh** mood but he went through 2 visits without asking for pain meds so I see that as a plus. Last visit was more solemn, tired acting which is usually how they are, especially after a day when he does his exercises and has day visitors.
My peetlebug is just the most excited sister on the planet right now with her visit with him this afternoon and his reactions to movement. Reinforces the power of family and prayer!!
He understands about the traech surgery tomorrow and being the Justin he is had only one question for anesthesia---"how soon before I can eat?"---you just gotta love my Justin. Of course, it will still be some time for that to happen. He has to adjust to the traech and get weined off the breathing machine then he can start slow and work up with food/liquids but this is a definite step in the right direction for healing.
As with all surgeries, there are risks--his are slightly increased due to his condition but I know everyone will be praying for success so we can get to the next level of healing then rehab then walking again.
We love all you guys and will update again tomorrow.
My peetlebug is just the most excited sister on the planet right now with her visit with him this afternoon and his reactions to movement. Reinforces the power of family and prayer!!
He understands about the traech surgery tomorrow and being the Justin he is had only one question for anesthesia---"how soon before I can eat?"---you just gotta love my Justin. Of course, it will still be some time for that to happen. He has to adjust to the traech and get weined off the breathing machine then he can start slow and work up with food/liquids but this is a definite step in the right direction for healing.
As with all surgeries, there are risks--his are slightly increased due to his condition but I know everyone will be praying for success so we can get to the next level of healing then rehab then walking again.
We love all you guys and will update again tomorrow.
Sunday July 19
Learn something new each visit. The traech is scheduled for in the morning. We met with Dr. Robbins who will do the surgery and another benefit is to prevent permanent damage to his vocal cords, no one had mentioned that possibility (go figure). There is risk as with all surgeries and his stems more from the area of the traech being in the area of his other injuries but this is still a good thing for Justin. Will help him with mobility, feel better in general and definitely better communication (go Justin---here come the fussing for all the times we couldn't understand him). However, he mentioned he would be like a "robot"!! He was alert and responsive, still a 'whatever' attitude. Vitals were good, temp down, they x-rayed his vertebrae and Mama Hen is back on duty watching over him and telling him how sweet he is. She seems like a good nurse, taking care of him like a mama would. They've changed up his pain meds which is suppose to be a good thing. Muscles were tight with tension during exercises this morning so I told him pain or not we had to do them every visit unlike yesterday when he was tired & hurting we didn't push so hard. He said okay!! Scotty witnessed his 'knee-jerk' reaction again when I lifted his left leg---we're holding on to that reaction being a positive sign.
We'll continue the updates as we can. Tomorrow's may be late since he'll be in surgery and we probably won't be home until after the last visitation Monday night.
Love you all, keep praying for recovery and healing, strength & courage and that he'll walk again (In Jesus name, Amen)!!
We'll continue the updates as we can. Tomorrow's may be late since he'll be in surgery and we probably won't be home until after the last visitation Monday night.
Love you all, keep praying for recovery and healing, strength & courage and that he'll walk again (In Jesus name, Amen)!!
Saturday, July 18, 2009
Saturday continued
1:30 visit had good vitals, just a bit of down spirits--Mama Hen for a nurse so I'm sure Justin was feeling a double dose of 'how do you feel' and "don't get discouraged" speeches. 4:30 seemed a bit more tired and agitated. Different nurse who seemed a bit scatter-brained, some wires were disconnected on Justin and she had some trouble with getting his new antibiotic line running. 100 fever, 99/47 BP, SPO2 was at 94. He started dozing so we cut the visit start at 45 minutes. Dad is taking the 7:30 visit so I can try to get some housework done. Will update again on progress, so far the traech is still on for Monday, hopefully that procedure goes well and Justin starts to feel better, he'll be able to get up and start moving around with a neck brace so we continue to pray.
Thanks to all that continue to pray for him (and us) and follow his progress. Love you all!!
*****The traech has been discussed for about 9 days. It feeds the breathing tube through his neck to clear his mouth for better communication and overall feeling better for the patient. IT also allows for more moveability but holds easy access in an emergency situation--the sooner he can move the sooner rehab can start to do its job and rejuvenate even if the docs say small chance, God can heal that spine and rehab will help. Neurology has been recommending this for a week and pulminary originally mentioned it then changed their mind. We've had a LOT of conflicting info which is why we chose to finally confront doctors....nurses said traech him, neuro said traech him but it was never done and pulminary had priority over Justin---got to have lungs before you can walk again!! HOWEVER, after talking with neuro--Dr. Woodham (neuro) called Dr. Proffitt (pulminary) for a consulation----now we have orders for a treach, a neck brace and instructions in print on how to do physical therapy even when PT isn't around to do it for him. I hope this answers your question, Amanda. I love you guys.
Also, I'm still new at this---still haven't figured out how to answer 'comments' without having to either post a new blog or update an existing one.
Thanks to all that continue to pray for him (and us) and follow his progress. Love you all!!
*****The traech has been discussed for about 9 days. It feeds the breathing tube through his neck to clear his mouth for better communication and overall feeling better for the patient. IT also allows for more moveability but holds easy access in an emergency situation--the sooner he can move the sooner rehab can start to do its job and rejuvenate even if the docs say small chance, God can heal that spine and rehab will help. Neurology has been recommending this for a week and pulminary originally mentioned it then changed their mind. We've had a LOT of conflicting info which is why we chose to finally confront doctors....nurses said traech him, neuro said traech him but it was never done and pulminary had priority over Justin---got to have lungs before you can walk again!! HOWEVER, after talking with neuro--Dr. Woodham (neuro) called Dr. Proffitt (pulminary) for a consulation----now we have orders for a treach, a neck brace and instructions in print on how to do physical therapy even when PT isn't around to do it for him. I hope this answers your question, Amanda. I love you guys.
Also, I'm still new at this---still haven't figured out how to answer 'comments' without having to either post a new blog or update an existing one.
Saturday July 18
Visit this morning was good. We're having a good day so far. Temp was low grade, he's on a cooling blanket with tylenol, ranging around 99 so that's great. BP at 113 over 47, lower than lately but still better than our scare a few days ago with 91/38. SpO2 is 97, 95-100 is super with RESP average 25. Still watching his Sponge Bob marathon and more responsive this morning. Some frustration because Mom still can't get everything on first try. He had some questions and seemed to respond well to the answers, he heard the news that they should traech him Monday and has been told Sheppard is an amazing rehab center, we'll work hard next week making sure that happens (and it sounds like it may be soon and very intense rehab as long as Tricare and Ft. Rucker continue with their part).
We love all you guys and appreciate the continued support and prayers. Keep praying for recovery and God's healing so Justin will walk back to us.
We love all you guys and appreciate the continued support and prayers. Keep praying for recovery and God's healing so Justin will walk back to us.
Friday, July 17, 2009
Need help
Need help with anyone that understands TriCare--Sheppard Center has been noted as the best place for intensive rehab for Justin's condition. We continue to pray to God for his healing hands to embrace Justin and heal his wounds, injuries, spine, hands, legs and feet so that Justin will walk again. It has been mentioned that rehab may not happen if he loses TriCare. The military guidelines are complex and unlike "civilian" things as Ms. Peckham from the hospital has advised me. ANYONE that can help us see this through so that Justin gets the care he needs would be greatly appreciated. Any advise, direction or suggestion, please post it. PRAYER is our one thing we ask for. Continue to pray to God and believe in His ultimate power.
We left him tonight hoping he will rest. He has indicated he hasn't rested well since last night. He was tuned into the "Sponge Bob Marathon" and we brought him a Sponge Bob Pinata for his room---neither seemed to spark that Justin personality we so hoped to see.
For my Peetlebug---and you know who you are-----we love you too!! Know that this may be a huge moment reflecting on Justin's healing and recovery yet you are not alone either. We are here to love and care for both of you!!!
We will continue to keep updates, hopefully more timely, for all those concerned. Our deepest appreciation and grattitude for the support, encourage, prayers and concern.
We left him tonight hoping he will rest. He has indicated he hasn't rested well since last night. He was tuned into the "Sponge Bob Marathon" and we brought him a Sponge Bob Pinata for his room---neither seemed to spark that Justin personality we so hoped to see.
For my Peetlebug---and you know who you are-----we love you too!! Know that this may be a huge moment reflecting on Justin's healing and recovery yet you are not alone either. We are here to love and care for both of you!!!
We will continue to keep updates, hopefully more timely, for all those concerned. Our deepest appreciation and grattitude for the support, encourage, prayers and concern.
New to this blog stuff.
Dr. Lattimer visits on July 14th as new doc for the week. He states the right lung is remarkable at 100% improvement with left lung at 90% with minimal mucous and/or lung collapse. Justin's breathing is much improved and that he wasn't considering a traecheostomy (spelling??) anymore. He said x-rays and Justin's breathing were so improved they would be turning off the ventilator and let him start breathing on his own. Justin was EXCITED!! He was active and responsive, mouthing words (since some of us can't get the hand gestures down and he thinks the "20 questions game" doesn't work so well, lol---sometimes we get his actions right off then other times we run out of asking what he's trying to say and he thinks we are 'stupid'--ha ha). He wants the tubing out of his mouth so bad that he's trying to mouth words around the tubing, and is actually very good at it sometimes.
By nighttime he's noticeably tired but still responsive and even runs his cousin Brandi out of the room for mentioning she thought her head felt like she might be getting a sinus infection. He clearly wanted everyone out that might cause a set back and kept all visitors in laughter. Clearly he shows he's tired and groggy so it is best to let him rest. Nurses reiterate they will keep a watchful eye on him and monitor breathing to determine removal of his ventilator.
July 15, rough night once again hits. Justin is breathing on his own, however, his O2 has to go back to 100% after having been at 65%. He's depressed now with slight fever which continues to increase to 102, then 103 and ultimately reached 105 again with blood pressure dropping to 99/34, nurses say that's fine but mama disagrees. Lungs are rattling again and he's very drowsy for evening visit. Mama worries about his overnite condition and finds out why the next morning.
We get a July 16th phone call at 6:55 a.m. needing verbal approval to do another bronchioscopy, fever reduced to 102, mild sedation--he doesn't fight this time. Dad & Mom both do the 9:30 visit and find once again remarkable, unexpected--fever down, pulse up, heart rate good (after seeing 110 HR the night before) and he's breathing on his own again. The 'roller-coaster' ride wears you down and truthfully has affected Justin's spirits----one day getting told he will get off the ventilator, the next he's on 100% oxygen with no mention of even a traecheoscopy being considered much less getting the tubes out). Friends and family visit but Justin is clearly down with the recent turn. We talk with Dr. Woodham, express concerns.
July 17th, Justin continues to breathe on his own, blood pressue good, SPO2 at 95% (95-100 is great), fever below 101 continuously, spirits down--everything seems to be "whatever", he shows some signs of Justin's personality but very minimal. Traecheostomy is finally agreed upon and ordered but appears will be Monday before will be done, another reason for Justin to believe it won't happen.
Dr. Lattimer visits on July 14th as new doc for the week. He states the right lung is remarkable at 100% improvement with left lung at 90% with minimal mucous and/or lung collapse. Justin's breathing is much improved and that he wasn't considering a traecheostomy (spelling??) anymore. He said x-rays and Justin's breathing were so improved they would be turning off the ventilator and let him start breathing on his own. Justin was EXCITED!! He was active and responsive, mouthing words (since some of us can't get the hand gestures down and he thinks the "20 questions game" doesn't work so well, lol---sometimes we get his actions right off then other times we run out of asking what he's trying to say and he thinks we are 'stupid'--ha ha). He wants the tubing out of his mouth so bad that he's trying to mouth words around the tubing, and is actually very good at it sometimes.
By nighttime he's noticeably tired but still responsive and even runs his cousin Brandi out of the room for mentioning she thought her head felt like she might be getting a sinus infection. He clearly wanted everyone out that might cause a set back and kept all visitors in laughter. Clearly he shows he's tired and groggy so it is best to let him rest. Nurses reiterate they will keep a watchful eye on him and monitor breathing to determine removal of his ventilator.
July 15, rough night once again hits. Justin is breathing on his own, however, his O2 has to go back to 100% after having been at 65%. He's depressed now with slight fever which continues to increase to 102, then 103 and ultimately reached 105 again with blood pressure dropping to 99/34, nurses say that's fine but mama disagrees. Lungs are rattling again and he's very drowsy for evening visit. Mama worries about his overnite condition and finds out why the next morning.
We get a July 16th phone call at 6:55 a.m. needing verbal approval to do another bronchioscopy, fever reduced to 102, mild sedation--he doesn't fight this time. Dad & Mom both do the 9:30 visit and find once again remarkable, unexpected--fever down, pulse up, heart rate good (after seeing 110 HR the night before) and he's breathing on his own again. The 'roller-coaster' ride wears you down and truthfully has affected Justin's spirits----one day getting told he will get off the ventilator, the next he's on 100% oxygen with no mention of even a traecheoscopy being considered much less getting the tubes out). Friends and family visit but Justin is clearly down with the recent turn. We talk with Dr. Woodham, express concerns.
July 17th, Justin continues to breathe on his own, blood pressue good, SPO2 at 95% (95-100 is great), fever below 101 continuously, spirits down--everything seems to be "whatever", he shows some signs of Justin's personality but very minimal. Traecheostomy is finally agreed upon and ordered but appears will be Monday before will be done, another reason for Justin to believe it won't happen.
Justin's story
Where to begin. Because we did not immediately start this blog, some of the dates may be off by a day but the key points of trials and tribulations remain the same.
Most of you know the beginning of Justin's journey and the main reason for creating this blog site. (Thank you Ms. Henri for your suggestion and direction with this). It was early July 3rd, 2009. We received our phone call at 3:50a.m. saying we needed to pick Justin up from Enterprise Medical Center, he had been in an accident, was fine but groggy and needed someone to drive him home. This was not typical--there had been no middle of the night, wake from your sleep, something is wrong feeling---no heart-sinking 'accident' reaction, we dressed, woke our niece telling her we had to go to Enterprise--by God' grace she asked if she could ride with us rather than stay home by herself. We had our moment of awakening when we entered the hospital and was told he was having CTScans done, then we overheard paralysis and transfer to SE AL Medical Center. An MP was there, questions about if anything troubling had been going on in his life, alcohol was mentioned, no seatbelt was mentioned, he was awake and responsive but didn't remember what had happened. By 7:00am he had been transferred to SE where Dr. Woodham, neurologist with a great reputation was waiting to rush him into surgery for injury to his C6 vertebrae and spinal injury. We were told immediately quadraplegic with "small chance" of walking again. After several hours of surgery, he becomes one of the many members of the CCU ward on a ventilator. Saturday morning finds Dr. Voss reiterating the C6 damage with minimal chance of recovery. We finally asked what 'small' and 'minimal' meant--5% chance of recovering from paralysis. By 4:00 pm July 4th, we are called in by pulmonary because his chest x-rays show rapid decline in function and the "D" word is used as a possibility of what we may be facing. We were advised not to expect immediate results if he were to fight this latest set-back; this would be at least a week in coming back with his lungs. By July 5th we were seeing signs of improvement with a Peep 7 at 60% oxygen and arm movements. By July 6th, he was at Peep 7 with 40% in which the doctors had said 30-40% was great. We were amazed--our prayers were being answered and recovery seemed imminent. By July 7th the doctors were so pleased, they reduced his Peep to a 5 and we continued to see him improve to a Peep 5 with 40%. Joy was running rampant and prayers being answered. Arm movement was awesome and Justin's personality was delighting all that knows him (military brotherhood, family members and friends). Dr. Purvis ordered a pointer board for better communication and expressed the possibility of removing him from the ventilator.
Then came the days filled with requests like "take me home", "I'm hungry" and then ultimately "what's wrong with me". We skirted key issues like getting infections cleared up and lungs strong and healthy but Justin is smart--he started realizing he couldn't feel certain extremities but for every time we thought was the right time to fully disclose specifics something happened. A set-back in oxygen or a high fever or more cultures because they couldn't figure out the causes of certain issues. What the doctors anticipated would happen on July 4th and didn't was finally rearing its ugly face.
By nighttime July 8th, he spiked a 105 fever, lungs were worst they had seen yet, 100% oxygen at Peep 7 was again ordered, a 2nd bronchioscopy was ordered which he fought severely--he had to be completely sedated due to his obvious agitation. July 9th he's quiet, uncertain of what's happening but rebounding. Many, many visitors praying, lifting spirits and/or simply staring at him with silent hope for improvement. By July 11th, he's on a good day--well enough that we determine he deserves answers, clarity to what doctors say yet encouragement that says God can perform miracles and 6 states are praying for him. He doesn't remember any car accident, realizes he can't feel his legs, knows he has strength in his arms yet no control of wrists and hands. Understands his custody of Preston hasn't changed after contact with the Judge, gets emotional over some issues but still continues to show us that Justin personality we all know and love.
Monday July 13th starts well, I return to work (which he understands and acknowledges is okay) for morning hours while his Dad visits with him, then we fill the afternoon and evening visits with morale-boosting. The day ends with another rough night--foam develops in his lungs, pulminary adema is mentioned, MSRA was already mentioned 2 days earlier, his spirits are down. They treat these issues but he continues with mucus buildup and his breathing becomes so strained he is back at Peep 7 with 100% oxygen. Another bronchioscopy is ordered, this time he doesn't resist.
July 14, Tuesday--Dad makes his routine morning visit. Respiratory was in the room and his bed had been changed yet again. The nurses can't seem to agree on which bed is best for his lungs, bed-sores and spinal alignment. Justin is sprawled out like he owns the place and his oxygen is reduced to 85% at Peep 7. He's alert, his color looks better, has a slight fever but was not in pain and breathing better, as confirmed by his nurse. He was finally converted over to a PICC line which relieves IVs from running into both arms/hands and concentrates one central line with 3 IV access lines running from one arm. The pointer board proves unhelpful as he can't control hand motion but can truly show his strength with his arm movements. HIS EYES CAN TELL YOU ALOT most of the time, Mama isn't too good at scherades though.
Most of you know the beginning of Justin's journey and the main reason for creating this blog site. (Thank you Ms. Henri for your suggestion and direction with this). It was early July 3rd, 2009. We received our phone call at 3:50a.m. saying we needed to pick Justin up from Enterprise Medical Center, he had been in an accident, was fine but groggy and needed someone to drive him home. This was not typical--there had been no middle of the night, wake from your sleep, something is wrong feeling---no heart-sinking 'accident' reaction, we dressed, woke our niece telling her we had to go to Enterprise--by God' grace she asked if she could ride with us rather than stay home by herself. We had our moment of awakening when we entered the hospital and was told he was having CTScans done, then we overheard paralysis and transfer to SE AL Medical Center. An MP was there, questions about if anything troubling had been going on in his life, alcohol was mentioned, no seatbelt was mentioned, he was awake and responsive but didn't remember what had happened. By 7:00am he had been transferred to SE where Dr. Woodham, neurologist with a great reputation was waiting to rush him into surgery for injury to his C6 vertebrae and spinal injury. We were told immediately quadraplegic with "small chance" of walking again. After several hours of surgery, he becomes one of the many members of the CCU ward on a ventilator. Saturday morning finds Dr. Voss reiterating the C6 damage with minimal chance of recovery. We finally asked what 'small' and 'minimal' meant--5% chance of recovering from paralysis. By 4:00 pm July 4th, we are called in by pulmonary because his chest x-rays show rapid decline in function and the "D" word is used as a possibility of what we may be facing. We were advised not to expect immediate results if he were to fight this latest set-back; this would be at least a week in coming back with his lungs. By July 5th we were seeing signs of improvement with a Peep 7 at 60% oxygen and arm movements. By July 6th, he was at Peep 7 with 40% in which the doctors had said 30-40% was great. We were amazed--our prayers were being answered and recovery seemed imminent. By July 7th the doctors were so pleased, they reduced his Peep to a 5 and we continued to see him improve to a Peep 5 with 40%. Joy was running rampant and prayers being answered. Arm movement was awesome and Justin's personality was delighting all that knows him (military brotherhood, family members and friends). Dr. Purvis ordered a pointer board for better communication and expressed the possibility of removing him from the ventilator.
Then came the days filled with requests like "take me home", "I'm hungry" and then ultimately "what's wrong with me". We skirted key issues like getting infections cleared up and lungs strong and healthy but Justin is smart--he started realizing he couldn't feel certain extremities but for every time we thought was the right time to fully disclose specifics something happened. A set-back in oxygen or a high fever or more cultures because they couldn't figure out the causes of certain issues. What the doctors anticipated would happen on July 4th and didn't was finally rearing its ugly face.
By nighttime July 8th, he spiked a 105 fever, lungs were worst they had seen yet, 100% oxygen at Peep 7 was again ordered, a 2nd bronchioscopy was ordered which he fought severely--he had to be completely sedated due to his obvious agitation. July 9th he's quiet, uncertain of what's happening but rebounding. Many, many visitors praying, lifting spirits and/or simply staring at him with silent hope for improvement. By July 11th, he's on a good day--well enough that we determine he deserves answers, clarity to what doctors say yet encouragement that says God can perform miracles and 6 states are praying for him. He doesn't remember any car accident, realizes he can't feel his legs, knows he has strength in his arms yet no control of wrists and hands. Understands his custody of Preston hasn't changed after contact with the Judge, gets emotional over some issues but still continues to show us that Justin personality we all know and love.
Monday July 13th starts well, I return to work (which he understands and acknowledges is okay) for morning hours while his Dad visits with him, then we fill the afternoon and evening visits with morale-boosting. The day ends with another rough night--foam develops in his lungs, pulminary adema is mentioned, MSRA was already mentioned 2 days earlier, his spirits are down. They treat these issues but he continues with mucus buildup and his breathing becomes so strained he is back at Peep 7 with 100% oxygen. Another bronchioscopy is ordered, this time he doesn't resist.
July 14, Tuesday--Dad makes his routine morning visit. Respiratory was in the room and his bed had been changed yet again. The nurses can't seem to agree on which bed is best for his lungs, bed-sores and spinal alignment. Justin is sprawled out like he owns the place and his oxygen is reduced to 85% at Peep 7. He's alert, his color looks better, has a slight fever but was not in pain and breathing better, as confirmed by his nurse. He was finally converted over to a PICC line which relieves IVs from running into both arms/hands and concentrates one central line with 3 IV access lines running from one arm. The pointer board proves unhelpful as he can't control hand motion but can truly show his strength with his arm movements. HIS EYES CAN TELL YOU ALOT most of the time, Mama isn't too good at scherades though.
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