First to the many that continue to follow Justin's progress, thank you and forgive our delay yet once again.
Mama Hen--Justin's heading to SEAMC Wednesday 12/23 for a CT Scan and lower back x-rays. ETA should be 8:00 a.m. I will remind him to give you a call to see if you are in the building or if you were blessed with a few much needed days off.
Ms. Lue--Thanks for the encouragement. It sometimes takes a while to realize so many things are only temporary, regardless of how long it seems it will take to accomplish a goal, this too shall pass and a year from now we will barely remember the anxieties we feel right now. We love you much and appreciate you!!!
For LT.--met your dad yesterday. Seems like a very sweet man and it seemed to perk Justin to have him visit. I sometimes forget you and your family are long-time acquaintances to the Medley family (small world).
For all others not specifically named---there are so many of you that continue to pray and ask for updates, so many that encourage and offer a shoulder. Those are the blessings I say "thank you God" for daily. Even through the moments when I waiver in my faith, I am brought back to the many that keep me grounded and help me get back on track. Bless you all and thank you!!!
For the latest update:
Justin has been experiencing some popping of his spine in his lower back area for a few weeks now. We have finally managed to get an appointment with SEAMC to get a CT Scan of his upper spine because neurology believes it is "leaning". The lower back x-rays will hopefully explain why he is getting the popping which involves throbbing pain through his bottom and legs.
He has also been battling disagreements with his blood pressure, being low some mornings then high and as of late he has been having 182/98 with no obvious signs of what is causing the distress. Last night's episode was accompanied with a massive headache yet we were unable to locate a reason. We massaged his head and exercised his legs, took his shoes off and checked for pressure points--he said it wasn't urinary as for as he knew or bowel. Hopefully some of these tests tomorrow will open doors for discussion as to what is going on.
Therapist Andrew has him plaing Rock Band Drums on a Wi and he's pretty good at it. Wears him out but he's doing super. Also has improved his strength in his left arm to the point that Andrew is at a loss for what else he can do to really push that side. Justin continues to be weird with his body and reactions though. Left side vs. right side, nothing seems to be the "norm" with Justin. We just continue to pray that these are positive signs for recovery and improvement.
Functionality continues to be a slow progress. While his strengths improve weekly, no movements are new to report. Some motion in his thumbs but nothing by way of full hand improvement and some days his right wrist goes weak on him. He continues to have days where sensation is fleeting---can feel a knee today but that same feeling is lost tomorrow. He also indicates some days he can distinguish hot or cold, yet that also comes and goes.
We pray his body is just waiting for that right jump start.
Construction has been slow and I had a momentary meltdown; however, 'tis the season to believe in miracles and know that we shall overcome this portion of the journey as well. It may take us 6 months to wash down all the dust and clean floors and wipe down furniture and reclaim what we threw into what closet or storage unit, etc but there again, it goes back to having faith that it is temporary and will be back to a better routine that we had 2 months ago when we first got him home.
He has been approved for the FES Bike and E-stem machines. This is a wonderful thing. The FES bike uses electrodes to work his legs and he loves it. The e-stem is smaller and can work his abdomens, wrists and several other areas which is also fantastic.
He remains optimistic and upbeat even through the rough nights and the intense spasms he has been having the last few weeks. While some are tough enough to prompt some "mini-fits" that startle me sometimes, he regains himself and works through them.
His chairs are working out great and he even decided to go 'mud riding' yesterday. Of course, that meant a lot of sweeping of tires (and the mud was red and damp, yuk) but it gave us one more thing to laugh about instead of cry!!! And it was encouraging to have him outside playing with that boy of his!!
Well, duty calls---got a precious thing wanting some milk. Will definitely try to update again soon. Forgive the delay, first our computer crashed, then we had to lose it for a while witht he construction going on--we have a small corner in the living room that accommodates us for now and I wanted to give an update to you all.
I'm sure I've forgotten something, but will fit it in the next time.
Merry Christmas to you all, be safe, be blessed and we love you all!!!!
Tuesday, December 22, 2009
Saturday, December 12, 2009
Christmas Spirit
Here we are once again finding me apoligizing for the delay. So many of you have been our inspiration, strength and motivation to move forward and we continue to pray for you all and thank God for you all and feel bad that we don't update enough!!
Things since Thanksgiving---I wish I could say we are slacking on updates because of the holiday season but it is more so because things are that hectic (go figure---like they could get more chaotic than the last 5 months)!!
We have no tree up yet--not sure where to put one based on the home-modifications going on. That in itself is a new story---gotta love contrators!! A 2-3 week event has found itself lasting 5 so far and that's just outside work, no interior work has been done. Did come home Friday to find the new plumbing pipeline leaking and flooding the livingroom closet......no idea why or what will become of that, another day in paradise!!
What we do know:
Doctor visit with NeuroSpine did X-rays and Justin's spine is "leaning like the Tower of Peaza". They want to do a CT Scan and based on some issues he has been having with his lower vertebrae, they want to do some X-rays for that. We are waiting a call to let us know when that is to be done because Doc's office isn't equipped for these and we have to wait to let us know when SEALMC can do them. He goes back to Doc's office on Jan. 2010----------new year, new journey, new blessings, new thanksgivings!!
For those questioning:
We did a follow up with Neuro just to establish a local doc in case we had a need; we thought it was routine. The neck x-ray apparently showed something that concerned them to the point of mentioning a new surgery---going in through the back of the neck and even stated that due to the original urgency and location that perhaps they didn't recognize the tendancy towards his "leaning". Now they have to check if the spine has "fused" or not and determine next step. Justin said "hell no" to another surgery, but we think we have him contemplating that this may play a factor in some things coming back and others not.
Urology wasn't as concerned as we thought they would be so I guess all is well with that part of things. VA had already told us that kidneys and such were different but working well. Gotta love Justin and all of his uniqueness--keeps everyone else on their toes I guess!!
What other portion we didn't expect was his lower back "popping" and Neuro didn't know what to think of that. We have to have x-rays done. When it pops, it gives him a LOT of new throbbing, pain and anxiety about what is going on. NO NEW MOBILITY---just a lot of feeling, throbbing, uncontrolled activity.
WE WILL UPDATE ONCE WE HAVE AN APPOINTMENT AND ANY RESULTS!!
So much more to update on but must do what have to!!
Also, Scotty isn't feeling well at this time--ended up at ER with bad pain which turned out to be possible gout. Please pray that he will overcome his illnesses and rebound!!
So much to update on, house-transportaton-VA-new equipment-lack of equipment-loss of benefits-LOD-----
MaMa Hen---We have NOT forgotten you!! Seems like Rucker has an appointment every 2 weeks and with contractors being out, they get hectic for dad----we WILL be calling you; just can't pinpoint when, sorry!!
Betty/Joe---love you guys!! Charles/Carol---Merry Christmas!! Wayne--thinking of you through this season and pray you will be okay with the loss of Peggy!!
CLUTCH---Justin said Hello---
Anyone not mentioned----we are thinking and praying and thankful and trying to fit it all in. AND will try again to update---so much going on, so little time. I have to go do the "bedtime" stuff now.
Love you guys, Happy holidays, thank each of you............
Things since Thanksgiving---I wish I could say we are slacking on updates because of the holiday season but it is more so because things are that hectic (go figure---like they could get more chaotic than the last 5 months)!!
We have no tree up yet--not sure where to put one based on the home-modifications going on. That in itself is a new story---gotta love contrators!! A 2-3 week event has found itself lasting 5 so far and that's just outside work, no interior work has been done. Did come home Friday to find the new plumbing pipeline leaking and flooding the livingroom closet......no idea why or what will become of that, another day in paradise!!
What we do know:
Doctor visit with NeuroSpine did X-rays and Justin's spine is "leaning like the Tower of Peaza". They want to do a CT Scan and based on some issues he has been having with his lower vertebrae, they want to do some X-rays for that. We are waiting a call to let us know when that is to be done because Doc's office isn't equipped for these and we have to wait to let us know when SEALMC can do them. He goes back to Doc's office on Jan. 2010----------new year, new journey, new blessings, new thanksgivings!!
For those questioning:
We did a follow up with Neuro just to establish a local doc in case we had a need; we thought it was routine. The neck x-ray apparently showed something that concerned them to the point of mentioning a new surgery---going in through the back of the neck and even stated that due to the original urgency and location that perhaps they didn't recognize the tendancy towards his "leaning". Now they have to check if the spine has "fused" or not and determine next step. Justin said "hell no" to another surgery, but we think we have him contemplating that this may play a factor in some things coming back and others not.
Urology wasn't as concerned as we thought they would be so I guess all is well with that part of things. VA had already told us that kidneys and such were different but working well. Gotta love Justin and all of his uniqueness--keeps everyone else on their toes I guess!!
What other portion we didn't expect was his lower back "popping" and Neuro didn't know what to think of that. We have to have x-rays done. When it pops, it gives him a LOT of new throbbing, pain and anxiety about what is going on. NO NEW MOBILITY---just a lot of feeling, throbbing, uncontrolled activity.
WE WILL UPDATE ONCE WE HAVE AN APPOINTMENT AND ANY RESULTS!!
So much more to update on but must do what have to!!
Also, Scotty isn't feeling well at this time--ended up at ER with bad pain which turned out to be possible gout. Please pray that he will overcome his illnesses and rebound!!
So much to update on, house-transportaton-VA-new equipment-lack of equipment-loss of benefits-LOD-----
MaMa Hen---We have NOT forgotten you!! Seems like Rucker has an appointment every 2 weeks and with contractors being out, they get hectic for dad----we WILL be calling you; just can't pinpoint when, sorry!!
Betty/Joe---love you guys!! Charles/Carol---Merry Christmas!! Wayne--thinking of you through this season and pray you will be okay with the loss of Peggy!!
CLUTCH---Justin said Hello---
Anyone not mentioned----we are thinking and praying and thankful and trying to fit it all in. AND will try again to update---so much going on, so little time. I have to go do the "bedtime" stuff now.
Love you guys, Happy holidays, thank each of you............
Wednesday, November 25, 2009
Thanksgiving Updates
To the many, many folks that have kept us inspired and strong through our journey, I say thank you and Happy Thanksgiving. We continue to acknowledge you all as our blessings and wish we had more time to update more often.
Aunt Betty: We've learned the hard way to be patient and home modifications is no exception. After a week, we have one slab poured and no sign of anyone since. With the holidays, I don't expect to see anyone until next week now and won't hold my breath on that one either. We simply do as you said--take one day at a time.
Mama Hen--love you bunches and am glad to hear you have been spoiled with some baby sugars!! Sorry we haven't been able to get Dothan way. Things are hectic and will get more so next week when I go back to work full time but do hope to have a few Fridays to get that way and stop in to see you. Justin does continue to surpass expectations and encourage new comers with his determination.
As of this past week, PT works him hard and the few (and only visits) he has/will have with OT have shown him some exercises to improve his wrist strength. It's just finding the extra time to fit in doing these ourselves.
He told me last night he feels like he is getting more sensation further down his back and he can feel discomfort from leaning against the back of his chair. He already has sensation in the buttocks and can realize when he's been sitting too long. He thought he felt me touching his toes on his right foot the other night when I was doing his leg exercises but it was a fleeting feeling. I just look at each time whether momentarily or more than once as being a good sign. It if happened once, even briefly, it can happen again.
PT Andrew says he can tell the difference in his upper strength and continues to be impressed with how hard Justin works. He said he wishes he had had a way to gauge Justin's strength from day one so he could compare the improvements now.
Justin continues to look for opportunities to acquire transportation so he can go more often than just getting out for "business" things. I hope this comes soon so he can start getting out more. I know we are still early into being home but want to make sure he does not lose his motivation or inspiration or drive to improve.
Still no function in hands or fingers but we continue to pray for that blessing. No other problems with blood pressure although it was a tad-bit low on Monday, no more scares like 2 weeks ago.
As with everyone, days are busy but we will continue to update any improvements or just day-to-day goings on.
We love you all and continue to be ever so grateful for each of you being in our lives.
Happy Thanksgiving!!!!
Aunt Betty: We've learned the hard way to be patient and home modifications is no exception. After a week, we have one slab poured and no sign of anyone since. With the holidays, I don't expect to see anyone until next week now and won't hold my breath on that one either. We simply do as you said--take one day at a time.
Mama Hen--love you bunches and am glad to hear you have been spoiled with some baby sugars!! Sorry we haven't been able to get Dothan way. Things are hectic and will get more so next week when I go back to work full time but do hope to have a few Fridays to get that way and stop in to see you. Justin does continue to surpass expectations and encourage new comers with his determination.
As of this past week, PT works him hard and the few (and only visits) he has/will have with OT have shown him some exercises to improve his wrist strength. It's just finding the extra time to fit in doing these ourselves.
He told me last night he feels like he is getting more sensation further down his back and he can feel discomfort from leaning against the back of his chair. He already has sensation in the buttocks and can realize when he's been sitting too long. He thought he felt me touching his toes on his right foot the other night when I was doing his leg exercises but it was a fleeting feeling. I just look at each time whether momentarily or more than once as being a good sign. It if happened once, even briefly, it can happen again.
PT Andrew says he can tell the difference in his upper strength and continues to be impressed with how hard Justin works. He said he wishes he had had a way to gauge Justin's strength from day one so he could compare the improvements now.
Justin continues to look for opportunities to acquire transportation so he can go more often than just getting out for "business" things. I hope this comes soon so he can start getting out more. I know we are still early into being home but want to make sure he does not lose his motivation or inspiration or drive to improve.
Still no function in hands or fingers but we continue to pray for that blessing. No other problems with blood pressure although it was a tad-bit low on Monday, no more scares like 2 weeks ago.
As with everyone, days are busy but we will continue to update any improvements or just day-to-day goings on.
We love you all and continue to be ever so grateful for each of you being in our lives.
Happy Thanksgiving!!!!
Wednesday, November 18, 2009
Home front news
For those still following, I apologize once again for delays in updates.
As of this date, most know that we have been home now working on our 3rd week. Things have been different coming home.
Mama Hen: We are sorry no call yet. We had hoped for a visit this week but our trip to Ft Rucker proved eventful and time consuming. Board transfers are still a work in progress and time consuming, yet almost comical and bonding---definitely requires some patience and trust!!!
Since the BP scare, not too much else traumatic happening. Lots of visitors by way of PT, OT finally came out (even though she's leaving after this week--don't know what will happen then), nurses and evaluations, and of course the Ft Rucker visit that we thought was a "meet and greet" kind of thing turned into a full blown doctor visit, evaluation, order tests and come back in a week thing.
No construction started yet on the house modifications. They finally came out today to discuss a plan and we hope they will be back Friday to start with foundations. Found out that what was originally quoted as a two week event may now run 5 weeks--looks like a wonderful Christmas!! Yet I'm not complaining---getting started gets us closer to finishing.
PT continues to be impressed with Justin's strength & abilities (as do so many that meet him for the first time). Some have given us reason to question why they came out but if we can learn one new technique or better way, then it's worth their time to come out.
Justin thinks he has some tricep action going on. Says it's still too early to get excited but of course I do----anything new is worth some excitement. He's working hard on ab muscles, after what the RN told him about working them while we put him to bed. Funny how sometimes we think it's a spasm or something we did wrong and it's him working hard!!
As of this date, most know that we have been home now working on our 3rd week. Things have been different coming home.
Mama Hen: We are sorry no call yet. We had hoped for a visit this week but our trip to Ft Rucker proved eventful and time consuming. Board transfers are still a work in progress and time consuming, yet almost comical and bonding---definitely requires some patience and trust!!!
Since the BP scare, not too much else traumatic happening. Lots of visitors by way of PT, OT finally came out (even though she's leaving after this week--don't know what will happen then), nurses and evaluations, and of course the Ft Rucker visit that we thought was a "meet and greet" kind of thing turned into a full blown doctor visit, evaluation, order tests and come back in a week thing.
No construction started yet on the house modifications. They finally came out today to discuss a plan and we hope they will be back Friday to start with foundations. Found out that what was originally quoted as a two week event may now run 5 weeks--looks like a wonderful Christmas!! Yet I'm not complaining---getting started gets us closer to finishing.
PT continues to be impressed with Justin's strength & abilities (as do so many that meet him for the first time). Some have given us reason to question why they came out but if we can learn one new technique or better way, then it's worth their time to come out.
Justin thinks he has some tricep action going on. Says it's still too early to get excited but of course I do----anything new is worth some excitement. He's working hard on ab muscles, after what the RN told him about working them while we put him to bed. Funny how sometimes we think it's a spasm or something we did wrong and it's him working hard!!
Thursday, November 12, 2009
Thursday 11/12
We love you Aunt Betty and Uncle Joe........
And as usual, we need the reminders to keep us posting updates to the many that have helped us see our way through this journey.
I will start with the Monday scare that had dad thinking the worst: BP dropped everytime he attempted to get Justin out of bed. I started the day with leg exercises, arm exercises, a bed bath and clean clothes. Left him as I had before thinking PT was coming out for the first time. BP got as low as 66/46 and scared the "stew" out of dad....so much so that he wouldn't attempt to get him out of bed again and Justin refused to eat in bed.
I left work a bit early and we tried again (not before checking BP first and once again after we got him in the chair). It was better and so was his appetite. No other incident since. Scared daddy......bless his heart!! Justin had this happen once before at VA and he said this time wasn't as bad since he had experienced it before. Didn't help dad---was very cautious for a few days.
PT had come out twice--started Monday and they like him (I haven't met him yet) but if Justin gave a thumbs up, all's okay!! No OT yet but plenty of people coming out---so much I can't keep straight who is in charge of what.
I must say that I still haven't quite gotten the home routine down. I try the stretching at night, stretching 3 times a week in the morning, baths (which haven't been daily yet), meds and all the rest----trying to get a routine yet recognize it's still early into homecoming and limited available space until remods done. He's patient, go figure!!
No chair ready yet. Got word today that equipment isn't ready so no VA trip on the 18th. He was agitated with that news yet I'm hoping enough other stuff is keeping him busy that it won't weigh too heavy until we get the call.
Mama Hen--sorry no call yet to see you. Will figure out something. Can promise if you want to come see the chaos, we're at County Road 1 outside of Enterprise. Will give directions but don't expect you to go out of your way...........just may take some time to hit Dothan area. Have a Dr. appointment on 12/7---will see if that works for you. Most people (especially you having seen him at his worst) don't believe what they see now!!
Have a Ft. Rucker trip Tuesday and sign papers tomorrow for home modification loans. Expect contractors to start next week.
Message to Joe Burley: Ft Rucker took your sticker. SORRY!!! Scraped it right off the window. I told them it was your truck but he didn't seem to appreciate it!! Hope it doesn't cause too much trouble. We went on and off post getting Robyn moved (which still isn't done--lol) and that little fella said "got to come off"...............appreciate the use of the truck VERY MUCH!!!
I'm sure I'm forgetting bunches---have a precious thing wanting to talk at me right now.
Will close for tonight........try another update tomorrow. Love you all, respect and appreciate, believe so much in the power of prayer, keep all of you in our thoughts (Mary & Lydia--thinking of you daily) and will never fully express what it has meant to us that so many have kept us in their hearts and daily lives as we continue our journey!!
Brief Note: Robyn has a hubby coming in for RR this month and a new house trying to get organized. For anyone wanting to house-warm or 1/2 year anniverse or just send a warm 'thinking of you', she would appreciate it!!!!
LOVE YOU ALL and thank you...............prayer makes things happen!!!!
And as usual, we need the reminders to keep us posting updates to the many that have helped us see our way through this journey.
I will start with the Monday scare that had dad thinking the worst: BP dropped everytime he attempted to get Justin out of bed. I started the day with leg exercises, arm exercises, a bed bath and clean clothes. Left him as I had before thinking PT was coming out for the first time. BP got as low as 66/46 and scared the "stew" out of dad....so much so that he wouldn't attempt to get him out of bed again and Justin refused to eat in bed.
I left work a bit early and we tried again (not before checking BP first and once again after we got him in the chair). It was better and so was his appetite. No other incident since. Scared daddy......bless his heart!! Justin had this happen once before at VA and he said this time wasn't as bad since he had experienced it before. Didn't help dad---was very cautious for a few days.
PT had come out twice--started Monday and they like him (I haven't met him yet) but if Justin gave a thumbs up, all's okay!! No OT yet but plenty of people coming out---so much I can't keep straight who is in charge of what.
I must say that I still haven't quite gotten the home routine down. I try the stretching at night, stretching 3 times a week in the morning, baths (which haven't been daily yet), meds and all the rest----trying to get a routine yet recognize it's still early into homecoming and limited available space until remods done. He's patient, go figure!!
No chair ready yet. Got word today that equipment isn't ready so no VA trip on the 18th. He was agitated with that news yet I'm hoping enough other stuff is keeping him busy that it won't weigh too heavy until we get the call.
Mama Hen--sorry no call yet to see you. Will figure out something. Can promise if you want to come see the chaos, we're at County Road 1 outside of Enterprise. Will give directions but don't expect you to go out of your way...........just may take some time to hit Dothan area. Have a Dr. appointment on 12/7---will see if that works for you. Most people (especially you having seen him at his worst) don't believe what they see now!!
Have a Ft. Rucker trip Tuesday and sign papers tomorrow for home modification loans. Expect contractors to start next week.
Message to Joe Burley: Ft Rucker took your sticker. SORRY!!! Scraped it right off the window. I told them it was your truck but he didn't seem to appreciate it!! Hope it doesn't cause too much trouble. We went on and off post getting Robyn moved (which still isn't done--lol) and that little fella said "got to come off"...............appreciate the use of the truck VERY MUCH!!!
I'm sure I'm forgetting bunches---have a precious thing wanting to talk at me right now.
Will close for tonight........try another update tomorrow. Love you all, respect and appreciate, believe so much in the power of prayer, keep all of you in our thoughts (Mary & Lydia--thinking of you daily) and will never fully express what it has meant to us that so many have kept us in their hearts and daily lives as we continue our journey!!
Brief Note: Robyn has a hubby coming in for RR this month and a new house trying to get organized. For anyone wanting to house-warm or 1/2 year anniverse or just send a warm 'thinking of you', she would appreciate it!!!!
LOVE YOU ALL and thank you...............prayer makes things happen!!!!
Sunday, November 8, 2009
9 days home
Well, we have started out 9th day home and once again I find myself apologizing for delays in updating.
First, I must say to all of you Roll Tide Fans-----who scored first!!! I can only imagine how many of you were on the edge of your seats thinking we just might not win..........ha ha
To LT.--his roosting spot is CR 1, down at dad's!!
The week was, as expected, one full of getting routines down, scheduling kept on track and entertaining him since he's confined right now with limited space until modifications can be made. And since dad is playing baby sitter also to "young Justin" (and Preston is a hand full), it will take some time to work out details.
His home health nurse came out last week (he isn't too fond of, said he's leary of anyone that he has to tell how to do their job). Then PT/OT came out for evaluations. She also didn't impress me too much but I should say we are spoiled. Having beed educated at one of the best facilities in the country, it's tough expecting others to live up to that. She was impressed, though, with how much Justin can do for himself and encouraged him to continue. Any form of effort continues to work muscles, and she did offer a suggestion Justin had not thought of, so if you only get one message out of a visit, then it was worth it!!
He has discomfort in his shoulder blades, which as he says--makes us happy, but to him it is uncomfortable and sometimes painful. We tend to get excited over any new thing, whether be pain or not. He was also able to feel the hose extension to his leg bag resting on his knee and chin area. While he seems down that new things were coming almost daily before and have since slowed to once every other week, we continue to be encouraged. He just doesn't understand how he can be regaining so much sensation without improvements in functionality. Yet, we are still only starting month number 5, so we continue to stay positive and thankful.
I must say that Saturday turned out to be an experience (and no it wasn't due to the ball game, lol)....I helped Robyn move some of her stuff to her new home and Justin decided he would ride along. The manual lift doesn't work anywhere near as had hoped with helping get him in and out of vehicles. SO....we went with a board transfer!! But that only works with my car. So once loaded, he sat in the car listening to the game (and music) as we did our loading and unloading. After much exertion---then it was time to grocery shop (so she wouldn't starve in her new home--which moving still isn't finished uggh!) AND Justin was okay with going to WalMart. It was a site with me and Robyn getting him out of the car, so much so we had several people stopping wanting to know if they could help. But we got him out, spent an hour in WalMart and $80 of Justin spending on everything in site (we were starving, so everything looks good when you're hungry) then it was load him back in the car. Somehow, the unloading worked easier but we managed to once again get him in the car and back home. Once home, with Dad's help, we had him safe and sound back in the house.
1:00 getting to bed and that little S**t still wanted to be up by 9 this morning. I miss sleep LOL.
Today we are trying to get some structure around the house, laundry caught up-supplies organized-carpet cleaned (a must, especially with a dog and a 4 year old-ha) and get a game plan for a new week.
PT/OT should be starting this coming week. She hopes to have his PT guy come out early Monday to set goals and a schedule for workouts. Not sure on OT since they lady they have is quitting in 2 weeks and they don't have a replacement. This may be something that means we have to change agencies and start all over again. Another part of being in a new environment trying to get things back to a routine.
Contractor should be out a week from Monday to get started on home changes which will help tremendously just getting some more space and hopefully getting a workout routine will help fill his days, not so much just sitting watching the TV or the wind blow or Preston turn red from all of our clay (another ha ha).
He gets his power chair on the 18th, we pray that will go well. Have no choice but to go back to Augusta for that one. Hopefully soon we will be more "normal" and all of this will become second nature to us all.
We also continue to thank each of you for your support, encouragement, suggestions and overall prayers that have helped us in so many ways!!
We love you all......................Geaux Tigers!!!!!
First, I must say to all of you Roll Tide Fans-----who scored first!!! I can only imagine how many of you were on the edge of your seats thinking we just might not win..........ha ha
To LT.--his roosting spot is CR 1, down at dad's!!
The week was, as expected, one full of getting routines down, scheduling kept on track and entertaining him since he's confined right now with limited space until modifications can be made. And since dad is playing baby sitter also to "young Justin" (and Preston is a hand full), it will take some time to work out details.
His home health nurse came out last week (he isn't too fond of, said he's leary of anyone that he has to tell how to do their job). Then PT/OT came out for evaluations. She also didn't impress me too much but I should say we are spoiled. Having beed educated at one of the best facilities in the country, it's tough expecting others to live up to that. She was impressed, though, with how much Justin can do for himself and encouraged him to continue. Any form of effort continues to work muscles, and she did offer a suggestion Justin had not thought of, so if you only get one message out of a visit, then it was worth it!!
He has discomfort in his shoulder blades, which as he says--makes us happy, but to him it is uncomfortable and sometimes painful. We tend to get excited over any new thing, whether be pain or not. He was also able to feel the hose extension to his leg bag resting on his knee and chin area. While he seems down that new things were coming almost daily before and have since slowed to once every other week, we continue to be encouraged. He just doesn't understand how he can be regaining so much sensation without improvements in functionality. Yet, we are still only starting month number 5, so we continue to stay positive and thankful.
I must say that Saturday turned out to be an experience (and no it wasn't due to the ball game, lol)....I helped Robyn move some of her stuff to her new home and Justin decided he would ride along. The manual lift doesn't work anywhere near as had hoped with helping get him in and out of vehicles. SO....we went with a board transfer!! But that only works with my car. So once loaded, he sat in the car listening to the game (and music) as we did our loading and unloading. After much exertion---then it was time to grocery shop (so she wouldn't starve in her new home--which moving still isn't finished uggh!) AND Justin was okay with going to WalMart. It was a site with me and Robyn getting him out of the car, so much so we had several people stopping wanting to know if they could help. But we got him out, spent an hour in WalMart and $80 of Justin spending on everything in site (we were starving, so everything looks good when you're hungry) then it was load him back in the car. Somehow, the unloading worked easier but we managed to once again get him in the car and back home. Once home, with Dad's help, we had him safe and sound back in the house.
1:00 getting to bed and that little S**t still wanted to be up by 9 this morning. I miss sleep LOL.
Today we are trying to get some structure around the house, laundry caught up-supplies organized-carpet cleaned (a must, especially with a dog and a 4 year old-ha) and get a game plan for a new week.
PT/OT should be starting this coming week. She hopes to have his PT guy come out early Monday to set goals and a schedule for workouts. Not sure on OT since they lady they have is quitting in 2 weeks and they don't have a replacement. This may be something that means we have to change agencies and start all over again. Another part of being in a new environment trying to get things back to a routine.
Contractor should be out a week from Monday to get started on home changes which will help tremendously just getting some more space and hopefully getting a workout routine will help fill his days, not so much just sitting watching the TV or the wind blow or Preston turn red from all of our clay (another ha ha).
He gets his power chair on the 18th, we pray that will go well. Have no choice but to go back to Augusta for that one. Hopefully soon we will be more "normal" and all of this will become second nature to us all.
We also continue to thank each of you for your support, encouragement, suggestions and overall prayers that have helped us in so many ways!!
We love you all......................Geaux Tigers!!!!!
Monday, November 2, 2009
Homecoming
For all of you that have helped so much during the last few months, I wanted to thank you.
We arrived home Friday nite around 9pm after a six hour trip. The transfer out of the car upon our arrival was a new experience. The lift we have at home isn't as accommodating as the other one we had available and wouldn't work with my car; therefore, after about 20 minutes deliberation we decided on a manual board transfer. That transfer took about 60 seconds and couldn't have gone better. We thought he was going to have to sleep in the car there for a bit, but things worked out!!
Saturday was hectic, of course.....we went from organized and routine to home and chaotic, things like where's the box with the supplies to where to throw the used linens and supply trash until you can get him up and about. Which "up and about" isn't very much since he's in a pieced-together manual that won't roll across carpet--more home mods to deal with!! Even the Molift won't cooperate that well on carpet, another way for mama to build some muscles, ha ha!
Was late getting to bed Saturday, good thing we gained an hour but Justin doesn't like staying in bed late so Sunday found him a bit off and in need of the structure we had in Atlanta. I told him I was in need of serious sleep but know that we do need to get our system/groove back so this can all fall back into place----can't let the location change get us overwhelmed with schedules and routines.
His impatience is resurfacing and reasonably so, sitting out here looking at corn fields and wind blowing isn't exactly what he's been doing for 4 months and none of us want to see him lose his momentum for rehabilitation. He's qualified for home health so we're waiting to hear how soon that will start---will give him some workouts until we can get transportation and outpatient treatments started; also keeps him with something to do while I work and he's home with Dad and Preston, who will both be busy-one being a kid and the other being tired from handling them both all day (lol)!!!
Mama Hen---he wants to make a trip to Dothan soon when we can get more comfortable with the manual transfers; he asked me to get your schedule so he can come surprise you one day!!
I was due to show up for work Monday but asked for one more day to try to get more organized before trying to fit that into my "new normal" routine. I look forward to seeing each of you and thanking you for everything.
We continue to pray for full recovery and thank God for each improvement, new sensation or overall easy transition........so much that makes such big differences!!!
LT.----you didn't go into the dog house, Justin didn't have his phone for a few days (and it was turned off, by accident somehow). Hope you have gotten your message from him and are feeling some "brotherly love".............
Ms. Henri: we need to talk whenever you have some time that won't interfere with my coming back to work. I need some serious pointers on how to make this all work!!
For everyone: We love you all and are so grateful!!
I now have weight shifts and laundry and unpacking and mail to answer and loans to try to qualify for and a 4 year old wanting to play and a hubby that's been home and now has to relearn all of the things that Justin needs everyday!!! Happy, happy-Joy, Joy--Fun times!!!
Will see some of you tomorrow and will continue to update all of you!!!
We arrived home Friday nite around 9pm after a six hour trip. The transfer out of the car upon our arrival was a new experience. The lift we have at home isn't as accommodating as the other one we had available and wouldn't work with my car; therefore, after about 20 minutes deliberation we decided on a manual board transfer. That transfer took about 60 seconds and couldn't have gone better. We thought he was going to have to sleep in the car there for a bit, but things worked out!!
Saturday was hectic, of course.....we went from organized and routine to home and chaotic, things like where's the box with the supplies to where to throw the used linens and supply trash until you can get him up and about. Which "up and about" isn't very much since he's in a pieced-together manual that won't roll across carpet--more home mods to deal with!! Even the Molift won't cooperate that well on carpet, another way for mama to build some muscles, ha ha!
Was late getting to bed Saturday, good thing we gained an hour but Justin doesn't like staying in bed late so Sunday found him a bit off and in need of the structure we had in Atlanta. I told him I was in need of serious sleep but know that we do need to get our system/groove back so this can all fall back into place----can't let the location change get us overwhelmed with schedules and routines.
His impatience is resurfacing and reasonably so, sitting out here looking at corn fields and wind blowing isn't exactly what he's been doing for 4 months and none of us want to see him lose his momentum for rehabilitation. He's qualified for home health so we're waiting to hear how soon that will start---will give him some workouts until we can get transportation and outpatient treatments started; also keeps him with something to do while I work and he's home with Dad and Preston, who will both be busy-one being a kid and the other being tired from handling them both all day (lol)!!!
Mama Hen---he wants to make a trip to Dothan soon when we can get more comfortable with the manual transfers; he asked me to get your schedule so he can come surprise you one day!!
I was due to show up for work Monday but asked for one more day to try to get more organized before trying to fit that into my "new normal" routine. I look forward to seeing each of you and thanking you for everything.
We continue to pray for full recovery and thank God for each improvement, new sensation or overall easy transition........so much that makes such big differences!!!
LT.----you didn't go into the dog house, Justin didn't have his phone for a few days (and it was turned off, by accident somehow). Hope you have gotten your message from him and are feeling some "brotherly love".............
Ms. Henri: we need to talk whenever you have some time that won't interfere with my coming back to work. I need some serious pointers on how to make this all work!!
For everyone: We love you all and are so grateful!!
I now have weight shifts and laundry and unpacking and mail to answer and loans to try to qualify for and a 4 year old wanting to play and a hubby that's been home and now has to relearn all of the things that Justin needs everyday!!! Happy, happy-Joy, Joy--Fun times!!!
Will see some of you tomorrow and will continue to update all of you!!!
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