Gray skies over Atlanta

Well, it is 7:51pm CST and we've made it home long enough to unload the car and put it all in the living room and me to start the latest update.

It has seemed like a long, dreary rollercoaster ride this past week. Everything we were told a month ago to expect has decided to creep up on Justin a month later.

I previously noted his bout with his 2nd UTI, they claimed another round with dsyreflexia but Justin insists "NO", he said there was no 'migraine' headache so he thinks they misjudged that one (or jumped too fast to blame something) and has been experiencing reflex which I'm confused over since they changed him over to the condom catheter the last few days---sorry to anyone that doesn't understand (henri and mama hen and all you nurses do). This form of catheter is supposed to help him not wet himself since he cannot yet control his bladder; however, he has done so twice just on Saturday which means somethings wrong with the catheter or the installation of it!! He's only had one other time like this and it was because he was holding 1100cc. That's not the case with these on Saturday. Don't know but hope to have some answers soon.

He's been extremely cold the whole visit with Sunday finding us leaving him with his LSU blanket from shoulders to ankles, a hospital blanket wrapped around neck, shoulders, arms and hands and his LSU taboggin (spelling???) on his head.

The pain in his right shoulder is supposedly tendonitis and he gets treatment tomorrow for that but he said the pain in his left shoulder, shoulder blade and arm hurts 10 times worse. Robyn tried massaging it out and said it hurt so bad it made him tear up (sorry Justin, I know TMI!!) He said he would discuss it with the doc in the morning and see if PT/OT can do their treatment on both sides tomorrow but he said they told him that if this treatment doesn't work then his aggressive rehab schedule will be put off for approximately 4 weeks. I'm trying to stay positive.

PT Beth mentioned Friday that he does miss us when we're gone. He tried making light of it but it concerned me a bit for her to say that in front of him. I guess it's just Mama worrying too much.

We saw him enough on Saturday to have lunch with him and let him say good-bye to Pretzel then we had to make that 5 hour round trip to Augusta to make the visitation swap. Made it back in time to say good-night to him, gather his clothes and head to the hotel to do his laundry.

Today was gloomy with rain again!! Makes for a long day when inside is all you have to look forward to during family time. We fed him again but his appetite seemed less than normal. He kept saying he was okay, just cold. He stayed up late last night doing some research online with his roommate Michael. Being tired could have played a part but he didn't really get out of bed until almost 1pm.

I'm sure this was just another one of those 'stalled' out weeks and I shouldn't worry.

Dad plans to touch base with him on Monday to see how the treatment, etc. went so we'll try to post again when we know something. Only pics I got were on my cell phone and I don't know how to get them to the computer. Anyone that wants to volunteer getting me to send them to your cell phone and then load them and email them to me, I'm willing (I guess too much technology or too tired one--ha).

Love you all, another reminder that prayer, encouragement and support are the ingredients to seeing us all through this journey!!! THANK YOU!!!