I apologize for the delay and infrequent updates. There have been many, many things going on--some we are unable to discuss at this time---yet so much we appreciate you all for!!
Graduation Day came for Justin at 11:15 a.m. September 15, 2009. He will transfer to the VA Rehab facility in Augusta tomorrow around mid-morning. PT still has a few more tests to do in the morning at 9 then we transfer out.
I would like to say that his ASIA has changed from a B to a C as we were hoping but so far it does not appear that we will leave with an ASIA C; however, there are so many things that are proving positive that we feel confident the possibility of becoming a C upon Justin's return to Shepherd is definitely there.
He spent yesterday with me learning lifts from chair to floor and back from floor to chair. Then OT did some muscle tests. Still no triceps but improving in biceps, deltoids (??) and other areas. His right side is still strongest for him, yet he is showing signs of sensation in his left leg (go figure, we finally got medical confirmation that Justin is "weird"---ha ha).
He also indicated today at lunch that he is getting some sensation in his "ring" finger, nothing in pinky yet but he's tickled with ring finger because that is sensation 'below the injury level'. He also said that he's feeling a pain on his right heel---I didn't see anything but yukky, cracking dry skin--no sores---but it is something to watch and very interesting. But nurses told him that for each thing he gets back there may be pain associated with it (pain might be rough but the pain will be awesome, means things are happening---lol).
He asked a lot of questions yesterday, did some of his own research by borrowing one of their books and even asked Doc a few questions, but he said Doc is a a pessimist, I think it's just Doc not wanting to get expectations up or giving false hope. I think Doc will be one of those who acknowledges miracles and determination when Justin proceeds with his progress.
Justin did say he had a round with is blood pressure this morning, 154/75 w/PR at 46. He said he didn't understand what was going on, it wasn't dysreflexia but he said he felt weird. Didn't happen again and BP was 99/65 this evening. Body temp, though, has been coming back at 95.4 yesterday and 95.9 tonight. He's been staying cold lately. So much to still learn and so much to continue to be amazed over and yet so much still praying for.
I'm sure I've forgotten something and apologize if I have. We are in the midst of packing our stuff for transfer, packing his stuff for transfer and making sure we keep it all separated out so that he gets what he needs at VA, we bring home whatever they think he shouldn't have at rehab and that nothing gets left behind. Then we have to clean the housing apartment and leave it all "spic and span" (ha).
I hope everyone enjoys the pics. Love you all, hope to be home soon (unfortunately without Justin, again) and continue to pray everyday for all of us!!!!
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I am so proud for you and of all of you! What a ride you have had. A new beginning tomorrow...and how much stronger Justin is for this move! I will NEVER forget his leaving here for there. Look at each transfer as a move forward! You are all such a testimony to strength, love, and faith. Keep us updated...so glad Shepherd's was a good experience and so much was gained there. We will never forget our time there or the good Dr Bilsky! Give hugs to Justin from Mama Hen!
ReplyDeleteJust wanted to say hello! I hope your trip was safe. I'm sure Justin was just glad to get out of the rehab center for awhile. The new pictures are great. It is always nice to see are read anything new. But we as your viewers sometimes forget that your job is a lot more than keeping us up dated. You are there to learn how to care for your son for when the time comes that you have to bring him home. So as far as me I will take what you give and it is your time not our time. You all need to take care of yourself as well as your son. Know that God is there with you always and never give up on your faith. Love to all of you hold your heads high and walk tall because Jesus is walking with you and holding your hand all the way.
ReplyDeleteLove to all of you. My Dear Sweet Sister you always are teaching me things even when you do not even know you are teaching me. I thank you for your strenght and your wisdom.
God Bless you all stay safe.