Day 4, 5, 6 and 7

Day 4 found Preston turning 4 years old and Robyn was going to surprise Justin with an early visit but she let the 'cat out of the bag' during a text that she was coming up that evening so he knew ahead of time she was coming (lol).

Did typical day in the gym and spent half the day trying to find a ride to Target---for this to be Atlanta it sure sucks when trying to get transportation, everyone wants a 24 hour notice and you get an answering machine or you wait 15 minutes on hold. Finally lucked up and found out that inpatient was doing an "outing" to of all places Target and because they all love Justin so much, they let him hitch a ride (mama of course had to drive Atlanta traffic-ha). Robyn and Preston made their way in about the time we were getting ready to check out and we headed back to housing for a late but fun birthday for Preston. Robyn has pics so I'll try to get some from her camera loaded and post them.

Long day turned into late nite so day 5 Friday was started on about 6 hours sleep (and it's not straight through sleep---feels like having a new born all over again, the waking up 3 times a night----but I'm not complaining).

Robyn and Preston spent some time with Justin that morning in the gym while I did some hurry up laundry. After that, I kept Preston busy while Robyn was allowed to stay in the gym and have some hands on with this therapy and learn some stuff. She said the workouts are brutal yet awesome, "they really work him"!! His OT Jamie and Justin both got her hooked on RummiKub also and Justin is so hooked he bought one Thursday---get ready all you folks back home, you ever come visit Justin here or at home---I'm sure it will be game on with Rummikub--it just wears him out sometimes using his hands and leaning over to see what's been played but he loves playing it and it's another form of therapy!

Day 6 and 7 were our first official weekend days at housing. Dad couldn't make the trip due to trying to get transportation going and working on paper work side of things.

It was COLD here so we didn't spend much time out Saturday. Sunshine prevailed on Sunday so we spent about an hour in the Garden so Preston could play with some of his birthday toys!!

Health wise Justin is doing good--I'm worried a bit this morning with him being so cold--left here with a long sleeve, a hoodie and beanie, a blanket and long pants and was still cold---all bundled up like he was expecting snow. He still hasn't had his flu & pneumonia shot yet; they are supposed to be getting those done for him---I pray it doesn't make him sick.

So far things are good--no bed sores while on my watch (knock on wood) but he has gotten a bit constipated---only one night without getting results but it's taking around an hour each night and not getting what he expects---he's tried over the counter help but nothing. He said last night that if the Milk of Mag didn't help maybe he would feel better---I said "whew" thank you---one of those 'can't get blood from turnips things'---but I understand his concerns, wouldn't want it getting backed up on him and causing intestional problems.

We had planned on a movie Saturday nite---me & Preston were to do Cloudy with Meatballs while Justin & Robyn did Law Abiding Citizen---I called Friday with our 24 hour reservation, made sure we mapped out how far the theater was and packed for any emergency then Saturday at 7:00 we went downstairs to wait for a 7:15 pickup (handicap accessible)--7:15 no show, 7:25 no show, I called and waited 5 minutes to finally get a "hold on" then waited again on hold--by this time Justin was disappointed and went back upstairs, after a third time of him wanting to put me on hold I said BS and hung up, getting around up here SUCKS!!!

He seemed better Sunday but I did lay back down after the early morning rise and put us a bit late getting started Sunday---of course, everyone slept in so I didn't feel too awful bad. Got Robyn and Preston on their way home last night and tucked ourselves in for another new week.

As for Justin: it's hard to know what's going on, he said the other night he was laying in bed and could feel that he was uncomfortable wanting to resposition himself and he said he couldn't tell if it was his imagination or not but it felt like his foot/ankle were moving; then there are the days when he says he can feel like his legs and feet are "sore" from being in one spot too long and you need to stretch them out. He said he sits there and tries so hard to move them--he said it's a weird feeling having your body feel that it needs to move but not being able to move it, makes us curious if he's supposed to be feeling these things!!

He's also wondering why he gets COLD during the day but HOT during the night! He wants the air kept down on 68 at night and said it feels like his legs are on fire!! Blood pressure has been doing good, been somewhat low a few days but we're keeping an eye on things---low to us is normal to a paralyzed--yesterday was 108/56 but he's been doing good with his around 120/70

I'm sure I'm forgetting tons of things---it's been very busy and so much going on and moving so fast and I barely have time to think about posting. Hopefully week two will find us with a better routine so that I can update daily. Still so much to do and praying it all comes together soon; he's definitely paranoid we won't have the house done in time for his departure---busy, busy!!!

We wanted to thank you all so very much for the yard sale and the money; it will definitely help us out more than you know!!! We continue to Thank God for all of you and your generosity, guidance, support and prayers!! May you all be as blessed as we are...............

Love you all and will try to get better focused and organized for the updates!!