I keep telling myself this just isn't happening. This is stuff LMN channel is made of, not reality--
Was running later that usual this morning and found Justin still in bed when I got there at 10. He had some throwing up last night and was still very nauseaus this morning. Every time he tried to sit up he got woosy again.
The nurse in there was trying to give him a new IV line and after two tries still couldn't get one running. Justin got perturbed which gave her an attitude so she said she would get Dr. Rivers to come in and run one. Rivers came in later and said she hasn't ran an IV in years and would prefer to leave it to the nurses who do it everyday.
Justin wasn't feeling any better and remained in bed, dozing off and on. Another male nurse came in later and tried to get the IV line again. After 3 attempts and a smaller needle he managed to get it. After attempt 2 Justin was frustrated again and reminded him that paralyzed people are hyper-sensitive. That guy's attitude seemed to get better. He also explained why he had to use Justin's right arm this time, even though Justin resisted at first. They left the first IV in his left arm in too long and have caused his vein to harden (some S word) that basically means the vein is unuseable now. He said it will not rejuvenate or heal itself. He also mentioned that could be part of why his blood is "septic".
I lost my save, should have known. Had this all written and lost it.
He finally got up around 1:30 and ate a late lunch, Bojangles, and managed to keep it down. I left him in his room around 6:30 after peanut butter crackers and vitamin water. Didn't feel up to supper and said he felt tired and weak. Nurse Dan is on tonight and I feel comfortable with him watching Justin. Hopefully he'll have a better night!! And maybe eat some more....
More bad news, Tuesday they said his orders were renewed and Tricare continued. Today they are saying no to orders and no to Tricare which means NO to Shepherd.
Hard watching your child lose his enthusiasm, sparkle and personality.
We continue to thank you all for prayers, support and encouragement.
Thursday, October 1, 2009
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Judy...have you called your Congressman?....See if he will go to bat for Justin....worth a try maybe....perhaps we can all call....let us know if you have crossed that bridge.......
ReplyDeletei wrote our State Senator yesterday, may not do any good but I voiced our concerns. In checking his web site, he is onthe Veterans/Military something... Just another committee probably, but we'll see. Are you all actually seeing the stuff from TriCare or is the place just telling you all what is being said/ordered. Might not hurt to call tri Care yourself.
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