I certainly didn't realize two weeks had passed. Sure does make you wonder where the time goes, and almost done with the first month of the New Year.....whew!!!
Still no completion on home mods yet---seems like we take 3 strides back for every one good step. If the breakers for that dinosaur box of ours will come in Thursday as we hope, we may actually get Justin moved into his room this weekend. I'm sure he will definitely enjoy being in his own room for a change instead of hanging out in our living room (ha).
Other miscellaneous issues with the rest of the construction but that's a day for when I can vent and not worry about whether they will come back and do it right or leave us hanging (yet again). I keep telling myself "one day" it will all be finished and done right (and pray alot).
As for Justin, his UTI has cleared up which has eased the amount of headaches and rounds with high blood pressure. He has seemed sluggish as of late but insists he is fine. He HATES when we ask "are you okay" and says he will let us know when something is wrong. I think he is tired of us 'smothering' over him so much and I can't get him to understand that it's just what parents do. He says we are paranoid and I'm sure we over-do sometimes; we just don't have all the right answers and as with anything, can screw things up occassionally (lol).
He has gotten more sensations back. You can run your fingers down under his left foot now and his toes react. His right foot has been doing this since Dothan but his left foot just started it recently. He also indicated a few nights ago that he has sensation further down his back. We continue to take these as encouraging signs that things are waking up. Of course, it's slow go so it can be frustrating to him sometimes to get small steps with no mobility or functionality with it. I just keep talking to God and take it a day at a time. I wanted it yesterday, apparently God hasn't decided yet on "His time".
His E-stem machine made it in finally and PT Andrew used it on his wrists and shoulders (I hadn't seen it used on the shoulders before). Dad and Justin both said it was different. Of course, Justin loves the e-stem. We're still waiting on the FES Bike; that is the one that Justin REALLY loves, it works his legs by electrode. He'll be on that thing everyday if you will let him.
He thought he felt a sensation in his right knee, but with a lot of things, it was fleeting and hasn't come back since. He checks it periodically and I keep thinking if it happened once, it can happen again. I just know he wishes some of these things would come back permanently.
I'm sorry for the delays in updating. I know so many of you have kept up with his progresses and/or stall days and have continued to encourage and pray. We appreciate you all for everything. Hopefully soon we can have some structure and a better routine so that we can update as they happen instead of Mama hurrying and worrying about forgetting to include something.
I hope this finds all of you staying warm & dry and in good health. We love you all!!!
Tuesday, January 26, 2010
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All I have to say tonight is...........Who DAT?!!!!!!!!
ReplyDeleteHey Hoss,
ReplyDeleteI sent you a note here and I tried calling your phone. No luck hearing from you in either sphere. Quit sitting on your hands, pick up your phone, dial my number, text or call me goofball. It's too easy.
M.