I apologize for no delays as of late. While you all have been in our thoughts and prayers, it has been a busy, strained last month.
Short version:
LOD decision is NO. Even with appeal, we've been advised it may not get reversed.
Shepherd trip for March 15th is postponed because my leave request at work was denied and Justin will not go back to Shepherd unless I am there since I've become primary caregiver, even though I work full time.
Home front--tensions are high, stress is high, taking it day-to-day and praying a lot.
Improvements--Justin continues to gain in upper strength and adaptation, yet somehow we acknowledge that progress isn't as rapid as it was early on through this journey. We continue to be thankful for what improvements he has and pray for continued recovery and healing.
Since there will be no Shepherd, home health will continue with PT Andrew, I will continue with lower extremities and find a way to incorperate the e-stem into his routine and hopefully the FES bike that we still haven't received will come in and I'll work out some kind of schedule to get him on that too.
He's doing some research into a touch screen computer and hopes to find a grant that will help him start taking some online courses. Small things I haven't yet quite figured out who to contact or how to get accomplished, especially working all day and chores at night.
But---we will figure it all out.
For the many that continue to show concern, prayer, patience and love----we thank you all!!
Hopefully we will update again with more time to give to the update and more progress to report.
Judy
Tuesday, February 23, 2010
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I'll be short n sweet too....I know from your words....stress is emotional and physically draining...I remain in AWE of all you guys have accomplished! Have you hooked up with Superman's Foundation? Christopher Reeves Foundation?..Perhaps there are some grants available through them....you guys remains in my heart and my prayers...much love your way!
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