Long Over due post

I won't apologize this time for the delay; I will simply say Thank you for the many that have followed this blog from day one. To all that have commented, supported, prayed and encouraged. And for any that still want to follow or stay in touch, I will post yet again what the last 6 weeks have seen.

This delay was selfish, stressful, contagious catching yet calming and somewhat eye opening.

There were a few days that Preston and I were sick with this crupey crud stuff, then Dad caught it and Robyn still struggles to get over it, then came the stomach bug that got Dad and Robyn both and now Dad has been diagnosed with an ulcer. Robyn still struggles to catch up on rest and get over these bugs that are carrying some heavy weight kicks to them.

I thank God every day that Justin has only had a few brief hiccups from all of these ailments. I couldn't imagine being in his position and having to fight off these viruses going around.

For those that haven't seen Justin in person, you really should. So many can't believe the progress he has made. It's not so much that he has regained hands or fingers or toes or feet, he has adapted and improves with attitude and motivation. Most that see him overlook that he still has not regained his hands or fingers. It takes them a second conversation to realize that he uses other means to handle things.

PT Andrew continues to be impressed with his drive and ability; although, there has been one down side lately. He has started online classes which has caused some serious tenonitis (spelling??) in his right arm and shoulder. We've had to do some nights of the "rice bag" and even a night of ice pack. I've noticed him using a bit more tylenol and arm stretches but that too shall be something we'll have to figure out. Of course, as mama, I said we'll just have to find someone (cheap) who can come out and type as he dictates (LOL).

Most of you know by now that we didn't make it to Shepherd but were blessed to have home health continue for anther 60 days. The FES bike is still in limbo---we were SO hoping to have that worked out before now. Justin loves being on the bike and it will give him a LOT more than my mama stretches in the morning before work and at night come bed time. There's been some muscle mass loss in the lower extremities but not so much that we're too concerned yet. Noticeable but not horrible. We've got an approval with a new company, it's just getting the "red tape" taken care of and getting that sucker out here.

For the Mama Hen's out there that read between the comments, things have been stressful, moments have caused question not so much to Justin but to family and future. We are putting full efforts into finding counseling and assistance to show a way to make day to day work for everyone concerned.

We've gone back to where our journey began---hoping Shepherd will guide us in our journey to find our way and fulfill our destiny and help us become a family again.

AND PRAYING...........

I see my child and see hope. I get tired yet see hope. I get inspiration and know there is hope. I have learned many lessons and know that Justin will prevail and still continue to know that walking is a miracle that God can provide. Nine months into this, he continues to have unexplained experiences, changes and sensations.

Justin only recently said he wished that there was a clear answer to what he was supposed to be doing. Others can tell him their experiences, yet it's theirs. I tell him to keep an open mind, it will come!!

Happy Easter to you all. It is with God we shall Live!!!

And as Preston said---may the Rabbit come see you all.

Love you all, pray for many, we're still hanging in there and appreciate the many that have hung in there for us.

As always, I know there is more to be said, read or explained. I'll do my best!!